Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool.

The objective of this study was to create a psychometrically sound measure of family-centered care, the Family-Centered Care Assessment (FCCA), developed through a process led by families in collaboration with maternal and child health leaders. The items for the FCCA scale were initially developed b...

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Publicado en:Maternal & Child Health Journal Vol. 19; no. 9; pp. 1899 - 1910
Autores principales: Wells, Nora, Bronheim, Suzanne, Zyzanski, Stephen, Hoover, Clarissa
Formato: research tables/charts Journal Article
Publicado: Springer Nature Sep2015
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Sep2015
      vid: 19
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      pub: Springer Nature
      place: New York, New York
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        atl: Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool.
      aug:
        au:
          Wells, Nora
          Bronheim, Suzanne
          Zyzanski, Stephen
          Hoover, Clarissa
        affil: Family Voices, Inc., Albuquerque USA
      sug:
        subj:
          Family Centered Care
          Family Assessment
          Instrument Construction
          Instrument Validation
          Family Attitudes
          Consumer Participation
          Pediatric Care
          Quality Improvement
          Validation Studies
          Human
          Scales
          Questionnaires
          Focus Groups
          Surveys
          Factor Analysis
          Rasch Analysis
          Item-Total Correlations
          Professional-Family Relations
          Parents
          Pediatricians
          Consumer Advocacy Organizations
          New Jersey
          New Mexico
          California
          Infant, Newborn
          Infant
          Child
          Adolescence
          Young Adult
          Ethnic Groups
          Male
          Female
          Insurance, Health
          Coefficient alpha
          Content Validity
          Construct Validity
          Inferential Statistics
          Descriptive Statistics
          Cultural Competence
          Decision Making
          Internal Consistency
          Concurrent Validity
          Convenience Sample
          Infant, Newborn: birth-1 month
          Infant: 1-23 months
          Child: 6-12 years
          Adolescent: 13-18 years
          Male
          Female
      ab: The objective of this study was to create a psychometrically sound measure of family-centered care, the Family-Centered Care Assessment (FCCA), developed through a process led by families in collaboration with maternal and child health leaders. The items for the FCCA scale were initially developed by families of children and youth with special needs in partnership with pediatric providers and researchers. Using an Institutional Review Board-approved research protocol, the questions were revised based on input from focus groups of diverse parents in three states. Parental responses (N = 790) to the revised 59-item survey were collected online from families in 49 states. Item distributions uniformly showed excellent spread. A principal axes factor analysis confirmed the existence of a single factor. Rasch modeling item analyses identified a reduced subset of 24 items that demonstrated excellent psychometric properties. All items met the criteria for a linear Rasch scale. Empirical evidence in support of the construct validity of the 24-item measure was derived: all items had a positive and substantial item-total correlation; person alpha scale reliability was >0.80 and the item reliability was >0.90; both separation indices were >2.0; infit and outfit statistics were within 0.5-1.5; and item difficulties ranged between −2 and +2 logits. Strong rank-ordered associations and large effect sizes were observed for six indicators of quality of care. This study's family-led process produced a tool, the FCCA, to measure families' experience of care with excellent psychometric properties.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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