Values associated with public involvement in health and social care research: a narrative review.
Background: Much has been written about public involvement (PI) in health and social care research, but underpinning values are rarely made explicit despite the potential for these to have significant influence on the practice and assessment of PI. Objective: The narrative review reported here is pa...
| Publicado en: | Health Expectations Vol. 18; no. 5; pp. 661 - 676 |
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| Autores principales: | , , , , , , , , , , |
| Formato: | research systematic review tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Oct2015
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=109969022&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 109969022 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Oct2015 vid: 18 iid: 5 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 109969022 109969022 109969022 10.1111/hex.12158 NLM24325553 109969022 ppf: 661 ppct: 15 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Values associated with public involvement in health and social care research: a narrative review. aug: au: Gradinger, Felix Britten, Nicky Wyatt, Katrina Froggatt, Katherine Gibson, Andy Jacoby, Ann Lobban, Fiona Mayes, Debbie Snape, Dee Rawcliffe, Tim Popay, Jennie affil: Mood Disorders Centre, Psychology, University of Exeter, Exeter UK sug: subj: Health Services Research Consumer Participation Research, Social Work Social Values Human Systematic Review Concept Mapping Textbooks PubMed Medline Embase Psycinfo Cochrane Library Thematic Analysis Commitment Ethics Delphi Technique Empowerment Morals Accountability Respect Trust ab: Background: Much has been written about public involvement (PI) in health and social care research, but underpinning values are rarely made explicit despite the potential for these to have significant influence on the practice and assessment of PI. Objective: The narrative review reported here is part of a larger MRC‐funded study which is producing a framework and related guidance on assessing the impact of PI in health and social care research. The review aimed to identify and characterize the range of values associated with PI that are central elements of the framework. Methods: We undertook a review and narrative synthesis of diverse literatures of PI in health and social care research, including twenty existing reviews and twenty‐four chapters in sixteen textbooks. Results: Three overarching value systems were identified, each containing five value clusters. (i) A system concerned with ethical and/or political issues including value clusters associated with empowerment; change/action; accountability/transparency; rights; and ethics (normative values). (ii). A system concerned with the consequences of public involvement in research including value clusters associated with effectiveness; quality/relevance; validity/reliability; representativeness/objectivity/generalizability; and evidence (substantive values). (iii) A system concerned with the conduct of public involvement in including value clusters associated with Partnership/equality; respect/trust; openness and honesty; independence; and clarity (process values). Conclusion: Our review identified three systems associated with PI in health and social care research focused on normative, substantive and process values. The findings suggest that research teams should consider and make explicit the values they attach to PI in research and discuss ways in which potential tensions may be managed in order to maximize the benefits of PI for researchers, lay experts and the research. pubtype: Academic Journal doctype: research systematic review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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