Associations of family characteristics with perceptions of care among parents of children with autism.
Background: Although autism spectrum disorder (ASD) is an increasingly common chronic disability, primary care provider (PCPs) report deficits in providing primary care for children with ASD, and parents report lapses in receipt of medical home services. In this study, we describe parental experienc...
| Publicado en: | Child: Care, Health & Development Vol. 42; no. 1; pp. 135 - 141 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jan2016
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=112059919&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 112059919 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03051862 6NX jtl: Child: Care, Health & Development issn: 03051862 maglogo: Y pubinfo: dt: Jan2016 vid: 42 iid: 1 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 112059919 112059919 112059919 10.1111/cch.12290 112059919 ppf: 135 ppct: 6 formats: fmt: @attributes: type: P tig: atl: Associations of family characteristics with perceptions of care among parents of children with autism. aug: au: Sobotka, S. A. Francis, A. Vander Ploeg Booth, K. affil: Section of Developmental and Behavioral Pediatrics, Department of Pediatrics, University of Chicago, Chicago IL, USA sug: subj: Parents of Children with Disabilities Autism Spectrum Disorder Family Characteristics Primary Health Care Utilization Human Health Services Accessibility Family Centered Care Cultural Sensitivity Caring Child Cross Sectional Studies United States Male Female Descriptive Statistics Chi Square Test Logistic Regression Data Analysis Software Child: 6-12 years Male Female ab: Background: Although autism spectrum disorder (ASD) is an increasingly common chronic disability, primary care provider (PCPs) report deficits in providing primary care for children with ASD, and parents report lapses in receipt of medical home services. In this study, we describe parental experiences with specific medical home components for their children with ASD. Methods: We analysed data from all children within the National Survey of Children with Special Health Care Needs database with ASD and a usual place for care (n = 2859). We evaluated the receipt of core medical home components: accessible, comprehensive, coordinated, family centred and compassionate and culturally sensitive care. Results: Children were mean age 10.1 years, and respondents were 75% mothers and 95% reported having a primary care provider (PCP). Seventy-one percent reported care to be usually comprehensive, over three-fourths of respondents reported care to be family centred and compassionate and 87% reported care to be culturally sensitive. Of the parents who reported a need for care coordination (n = 1049), only 14% of parents reported usually getting the help they needed. More educated, English-speaking, non-Hispanic White mothers of older children supported by private insurance were more likely to report never getting as much help coordinating care as desired. Coordination with education services are especially important for children with ASD, yet 27% of parents reported dissatisfaction with PCPs' communication with schools or early intervention. Conclusion: Although parents report a high level of access to PCPs and places for care as well as receiving most core components of the medical home, care coordination activities are lacking for children with ASD. More resourced families are particularly likely to report unmet needs. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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