Sustainable Family Care for Children with Disabilities.

The majority of parents want to continue caring for their sons and daughters with disabilities at home, and they are expected and actively encouraged to do so. Notwithstanding, and for reasons that are not well understood, a substantial number of parents seek to place their disabled son or daughter...

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Publicado en:Journal of Child & Family Studies Vol. 25; no. 2; pp. 530 - 545
Autores principales: McConnell, David, Savage, Amber, Breitkreuz, Rhonda, Sobsey, Dick
Formato: Artículo
Publicado: Springer Nature Feb2016
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Feb2016
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      pub: Springer Nature
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        10.1007/s10826-015-0245-0
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          McConnell, David
          Savage, Amber
          Breitkreuz, Rhonda
          Sobsey, Dick
        affil:
          Family and Disability Studies Initiative, Rehabilitation Medicine, University of Alberta, 3-66 Corbett Hall Edmonton T6G 2G4 Canada
          Human Ecology, University of Alberta, Edmonton Canada
          Educational Psychology, University of Alberta, Edmonton Canada
      su:
        Home care services
        Parents of children with disabilities
        Chi-squared test
        Statistical correlation
        Burden of care
        Data analysis software
        Descriptive statistics
      sug:
        subj:
          Home care services
          Parents of children with disabilities
          Offices of all other health practitioners
          Services for the Elderly and Persons with Disabilities
          Home Health Care Services
          Offices of All Other Miscellaneous Health Practitioners
          Chi-squared test
          Statistical correlation
          Burden of care
          Data analysis software
          Descriptive statistics
      keyword:
        Children with disabilities
        Ecocultural theory
        Out-of-home placement
        Children with disabilities
        Ecocultural theory
        Out-of-home placement
      ab: The majority of parents want to continue caring for their sons and daughters with disabilities at home, and they are expected and actively encouraged to do so. Notwithstanding, and for reasons that are not well understood, a substantial number of parents seek to place their disabled son or daughter out-of-home. The aim of this study was to investigate the attitudes of parent-carers in Alberta, Canada, toward out-of-home placement. The primary objective was to identify factors that may explain why some families, and not others, seriously consider out-of-home placement as an option for their child. This knowledge is vital for developing social care policies and programs that support parents and promote sustainable family care for children with disabilities. A stratified (by child age group) random sample of 538 families raising children with disabilities in Alberta, Canada took part. Participants completed the family life survey, which incorporated measures of child and family characteristics, sustainability of the daily routine, and out-of-home placement propensity. Results suggest that family placement propensity is inversely associated with the sustainability of the daily routine. Sustainability of the daily routine is, in turn, more strongly associated with social-ecological resources, including parental control-over-work and the adequacy of child care options, than with child characteristics, including activity limitations and behaviour problems. If families have the social-ecological resources they need to create and maintain a daily routine that is congruent with their values and goals, and with the needs, interests and competences of family members, then they are unlikely to give out-of-home placement any serious consideration.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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