Perceptions of family-centred services in a paediatric rehabilitation programme: strengths and complexities from multiple stakeholders.

Background Family-centred services (FCS) are best practice in paediatric rehabilitation and describe philosophies and approaches to medical care that emphasize the partnership and involvement of parents. While evidence supports FCS, there are complexities to its successful implementation. This mixed...

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Publicado en:Child: Care, Health & Development Vol. 42; no. 2; pp. 195 - 203
Autores principales: Arcuri, G. G., McMullan, A. E., Murray, A. E., Silver, L. K., Bergthorson, M., Dahan‐Oliel, N., Coutinho, F.
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Mar2016
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Perceptions of family-centred services in a paediatric rehabilitation programme: strengths and complexities from multiple stakeholders.
      aug:
        au:
          Arcuri, G. G.
          McMullan, A. E.
          Murray, A. E.
          Silver, L. K.
          Bergthorson, M.
          Dahan‐Oliel, N.
          Coutinho, F.
        affil: School of Physical and Occupational Therapy, McGill University, Montreal QC, Canada
      sug:
        subj:
          Family Centered Care
          Rehabilitation, Pediatric
          Parental Attitudes
          Child Development Disorders Rehabilitation
          Human
          Quantitative Studies
          Focus Groups
          Canada
          Summated Rating Scaling
          Semi-Structured Interview
          Content Analysis
          Child
          Child, Preschool
          Qualitative Studies
          Child: 6-12 years
          Child, Preschool: 2-5 years
      ab: Background Family-centred services (FCS) are best practice in paediatric rehabilitation and describe philosophies and approaches to medical care that emphasize the partnership and involvement of parents. While evidence supports FCS, there are complexities to its successful implementation. This mixed-methods study aimed to measure the extent to which parents and the healthcare provider (HCP) perceive service provision as being family centred, and to describe barriers and facilitators to the delivery of FCS. Methods Parents of children participating in a rehabilitation programme and HCPs providing services participated in this study. Parents completed the measure of processes of care-20 and participated in interviews, while HCPs completed the measure of processes of care-service providers and participated in a focus group. Results Quantitative analysis revealed that parents were mostly satisfied with features of FCS, which included communication and support between parents and HCPs, respect of diversity and parental collaboration and participation. Parents identified communication methods and psychosocial needs as areas that facilitated but sometimes detracted from FCS. Institutional barriers led to the identification of areas for improvement identified by multiple stakeholders. HCPs identified more areas for improvement than parents. Conclusion When considering these barriers, it is evident that implementation is a complex process, impacted by institutional barriers. FCS needs to be investigated further, and systemic interventions should be used to facilitate its implementation.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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