Impact of Alzheimer's disease on the family caregiver's long-term quality of life: results from an ALSOVA follow-up study.

Purpose: To examine caregivers' health-related quality of life (HRQoL) and well-being during the first 3 years after their family member's Alzheimer's disease (AD) diagnosis and assessed the relationship between caregivers' HRQoL, well-being, and the severity of AD. Further, to compare of caregivers...

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Published in:Quality of Life Research Vol. 25; no. 3; pp. 687 - 698
Main Authors: Välimäki, Tarja, Martikainen, Janne, Hongisto, Kristiina, Väätäinen, Saku, Sintonen, Harri, Koivisto, Anne, Välimäki, Tarja H, Martikainen, Janne A, Koivisto, Anne M
Format: research Journal Article
Published: Springer Nature Mar2016
Online Access:View this record in EBSCOhost
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      dt: Mar2016
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      pub: Springer Nature
      place: New York, New York
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        10.1007/s11136-015-1100-x
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        atl: Impact of Alzheimer's disease on the family caregiver's long-term quality of life: results from an ALSOVA follow-up study.
      aug:
        au:
          Välimäki, Tarja
          Martikainen, Janne
          Hongisto, Kristiina
          Väätäinen, Saku
          Sintonen, Harri
          Koivisto, Anne
          Välimäki, Tarja H
          Martikainen, Janne A
          Väätäinen, Saku
          Koivisto, Anne M
        affil: Pharmacoeconomics and Outcomes Research Unit, School of Pharmacy, University of Eastern Finland, 70211 Kuopio Finland
      sug:
        subj:
          Caregivers Psychosocial Factors
          Quality of Life Psychosocial Factors
          Alzheimer's Disease Nursing
          Health Status
          Family Psychosocial Factors
          Middle Age
          Aged, 80 and Over
          Prospective Studies
          Adult
          Aged
          Depression Psychosocial Factors
          Surveys
          Male
          Female
          Human
          Middle Aged: 45-64 years
          Aged, 80 & over
          Adult: 19-44 years
          Aged: 65+ years
          Male
          Female
      ab: Purpose: To examine caregivers' health-related quality of life (HRQoL) and well-being during the first 3 years after their family member's Alzheimer's disease (AD) diagnosis and assessed the relationship between caregivers' HRQoL, well-being, and the severity of AD. Further, to compare of caregivers' HRQoL to general population.Methods: Longitudinal design (36 months) after AD diagnosis of 236 caregiver-patient dyads. Linear regression was used to assess age- and gender-adjusted association between repeated measurements of caregivers' HRQoL and the severity of AD. For comparison with general population, the National Health 2011 Health Examination Survey data was utilized.Results: Caregivers had significantly lower HRQoL than age- and gender-standardized counterparts. Severity of AD was significantly (p < 0.05) associated with the mobility and depression dimensions of caregiver's HRQoL but not with the total HRQoL index score.Conclusions: Caregivers' HRQoL seems to deteriorate earlier than previously noted. The severity of AD has not that great impact on caregiver's HRQoL as assumed.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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