Outpatient management of intensively treated acute leukemia patients--the patients' perspective.
Purpose: In recent years, patients with acute leukemia (AL) have, to a greater extent, been managed in an outpatient setting where they live at home but appear every other day for follow-up visits at hospital. This qualitative article elucidates how patients with AL experience the different conditio...
| Publicado en: | Supportive Care in Cancer Vol. 24; no. 5; pp. 2111 - 2119 |
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| Autores principales: | , , , , , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Springer Nature
May2016
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=113946216&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 113946216 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09414355 O1J jtl: Supportive Care in Cancer issn: 09414355 maglogo: N pubinfo: dt: May2016 vid: 24 iid: 5 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 113946216 113946216 NLM26553032 113946216 10.1007/s00520-015-3012-2 NLM26553032 113946216 ppf: 2111 ppct: 8 formats: fmt: @attributes: type: P tig: atl: Outpatient management of intensively treated acute leukemia patients--the patients' perspective. aug: au: Jepsen, Lene Høybye, Mette Hansen, Dorte Marcher, Claus Friis, Lone Jepsen, Lene Østergaard Høybye, Mette Terp Hansen, Dorte Gilså Marcher, Claus Werenberg Friis, Lone Smidstrup affil: Interdisciplinary Research Unit, Elective Surgery Center, Silkeborg Regional Hospital, Falkevej 3 8600 Silkeborg Denmark sug: subj: Leukemia Therapy Patient Satisfaction Cancer Patients Adult Male Human Leukemia Psychosocial Factors Quality of Life Outpatients Psychosocial Factors Middle Age Female Prognosis Acute Disease Interviews Validation Studies Comparative Studies Evaluation Research Multicenter Studies Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Purpose: In recent years, patients with acute leukemia (AL) have, to a greater extent, been managed in an outpatient setting where they live at home but appear every other day for follow-up visits at hospital. This qualitative article elucidates how patients with AL experience the different conditions of the inpatient and outpatient settings and how they reflect on these transitions in order to create meaning in and keep up everyday life.Methods: Qualitative semi-structured individual interviews twice with each AL patient focusing on the outpatient setting, impact on everyday life, responsibility and the home were performed. Twenty-two patients were interviewed the first time, and 15 of these were interviewed the second time. The data were analyzed in an everyday life relational perspective.Results: Outpatient management facilitates time to be administrated by the patients and thereby the possibility of maintaining everyday life, which was essential to the patients. The privacy ensured by the home was important to patients, and they accepted the necessary responsibility that came with it. However, time spent together with fellow patients and their relatives was an important and highly valued part of their social life.Conclusions: Approached from the patient perspective, outpatient management provided a motivation for patients as it ensured their presence at home and provided the possibility of taking part in everyday life of the family, despite severe illness and intensive treatment. This may suggest a potential for extending the outpatient management further and also for patient involvement in own care. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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