Keep your mind off negative things: coping with long-term effects of acute myeloid leukemia (AML).
Purpose Of Study: Acute myeloid leukemia (AML) is characterized by sudden onset, intensive treatment, a poor prognosis, and significant relapse risk. Quality of life (QOL) and well-being among AML survivors have been extensively studied during the 6 months of active treatment. However, it is not cle...
| Published in: | Supportive Care in Cancer Vol. 24; no. 5; pp. 2035 - 2046 |
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| Main Authors: | , , , , , |
| Format: | research Journal Article |
| Published: |
Springer Nature
May2016
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=113946225&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 113946225 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09414355 O1J jtl: Supportive Care in Cancer issn: 09414355 maglogo: N pubinfo: dt: May2016 vid: 24 iid: 5 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 113946225 113946225 NLM26542270 113946225 10.1007/s00520-015-3002-4 NLM26542270 113946225 ppf: 2035 ppct: 11 formats: fmt: @attributes: type: P tig: atl: Keep your mind off negative things: coping with long-term effects of acute myeloid leukemia (AML). aug: au: Ghodraty-Jabloo, Vida Alibhai, Shabbir Breunis, Henriette Puts, Martine Alibhai, Shabbir M H Puts, Martine T E affil: Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, 155 College Street Suite 130 Toronto M5T 1P8 Canada sug: subj: Leukemia, Myeloid, Acute Psychosocial Factors Adaptation, Psychological Cancer Survivors Psychosocial Factors Psychotherapy, Group Methods Human Emotions Leukemia, Myeloid, Acute Drug Therapy Adult Program Evaluation Female Quality of Life Middle Age Qualitative Studies Leukemia, Myeloid, Acute Physiopathology Prospective Studies Male Support, Psychosocial Validation Studies Comparative Studies Evaluation Research Multicenter Studies Adult: 19-44 years Middle Aged: 45-64 years Female Male ab: Purpose Of Study: Acute myeloid leukemia (AML) is characterized by sudden onset, intensive treatment, a poor prognosis, and significant relapse risk. Quality of life (QOL) and well-being among AML survivors have been extensively studied during the 6 months of active treatment. However, it is not clear what survivors experience after active treatment. The purpose of our study was to explore how AML survivors describe their longer-term physical and psychosocial well-being and how they cope with these challenges.Methods: We conducted a prospective qualitative study and interviewed 19 adult participants (11 had completed treatment, 8 were receiving maintenance chemotherapy). Data were collected using semi-structured interviews that were audio-recorded and transcribed verbatim. The grounded theory approach was used for data analysis.Results: A marked improvement in physical health was reported; however, psychosocial well-being was compromised by enduring emotional distress. A range of emotion- and problem-focused coping strategies were reported. Keeping one's mind off negative things through engaging in formal work or informal activities and seeking control were the two most commonly used coping strategies. Seeking social support for reassurance was also common. Problem-focused strategies were frequently described by the ongoing treatment group to manage treatment side effects.Conclusion: Although physical symptoms improved after completion of treatment, psychosocial distress persisted over longer period of time. In addition, essential needs of AML survivors shifted across survivorship as psychological burden gradually displaced physical concerns. The integral role of coping mechanisms in the adaptation process suggests a need for effective and ongoing psychological interventions. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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