Post-sampling mortality and non-response patterns in the English Cancer Patient Experience Survey: Implications for epidemiological studies based on surveys of cancer patients.
Background: Surveys of the experience of cancer patients are increasingly being introduced in different countries and used in cancer epidemiology research. Sampling processes, post-sampling mortality and survey non-response can influence the representativeness of cancer patient surveys.Methods: We e...
| Publicado en: | Cancer Epidemiology Vol. 41; pp. 34 - 42 |
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| Autores principales: | , , |
| Formato: | research Journal Article |
| Publicado: |
Elsevier B.V.
Apr 2016
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=113973221&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 113973221 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 18777821 ATI4 jtl: Cancer Epidemiology issn: 18777821 maglogo: N pubinfo: dt: Apr 2016 vid: 41 pid: 82545 pub: Elsevier B.V. place: Philadelphia, Pennsylvania artinfo: ui: 113973221 113973221 NLM26797675 113973221 10.1016/j.canep.2015.12.010 NLM26797675 PMC4819677 113973221 ppf: 34 ppct: 8 formats: tig: atl: Post-sampling mortality and non-response patterns in the English Cancer Patient Experience Survey: Implications for epidemiological studies based on surveys of cancer patients. aug: au: Abel, Gary A Saunders, Catherine L Lyratzopoulos, Georgios affil: Cambridge Centre for Health Services Research, Institute of Public Health, University of Cambridge, Forvie Site, Robinson Way, Cambridge CB2 0SR, UK sug: subj: Survivors Statistics and Numerical Data Epidemiological Research Middle Age Neoplasms Epidemiology Aged Female Adolescence Adult Young Adult Aged, 80 and Over Human Male Validation Studies Comparative Studies Evaluation Research Multicenter Studies Funding Source Questionnaires Middle Aged: 45-64 years Aged: 65+ years Adolescent: 13-18 years Adult: 19-44 years Aged, 80 & over Female Male ab: Background: Surveys of the experience of cancer patients are increasingly being introduced in different countries and used in cancer epidemiology research. Sampling processes, post-sampling mortality and survey non-response can influence the representativeness of cancer patient surveys.Methods: We examined predictors of post-sampling mortality and non-response among patients initially included in the sampling frame of the English Cancer Patient Experience Survey. We also compared the respondents' diagnostic case-mix to other relevant populations of cancer patients, including incident and prevalent cases.Results: Of 109,477 initially sampled cancer patients, 6273 (5.7%) died between sampling and survey mail-out. Older age and diagnosis of brain, lung and pancreatic cancer were associated with higher risk of post-sampling mortality. The overall response rate was 67% (67,713 respondents), being >70% for the most affluent patients and those diagnosed with colon or breast cancer and <50% for Asian or Black patients, those under 35 and those diagnosed with brain cancer. The diagnostic case-mix of respondents varied substantially from incident or prevalent cancer cases.Conclusions: Respondents to the English Cancer Patient Experience Survey represent a population of recently treated cancer survivors. Although patient survey data can provide unique insights for improving cancer care quality, features of survey populations need to be acknowledged when analysing and interpreting findings from studies using such data. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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