Mapping chronic liver disease questionnaire scores onto SF-6D utility values in patients with primary sclerosing cholangitis.

Purpose: The chronic liver disease questionnaire (CLDQ) is a frequently used liver-specific quality of life instrument, but it does not provide information on preference-adjusted health status, which is essential for cost-utility analysis. We aimed to develop a mapping function deriving utilities fr...

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Publicado en:Quality of Life Research Vol. 25; no. 4; pp. 947 - 958
Autores principales: Kalaitzakis, Evangelos, Benito de Valle, Maria, Rahman, Monira, Lindkvist, Björn, Björnsson, Einar, Chapman, Roger, Kontodimopoulos, Nick
Formato: research Journal Article
Publicado: Springer Nature Apr2016
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Apr2016
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      pub: Springer Nature
      place: New York, New York
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        atl: Mapping chronic liver disease questionnaire scores onto SF-6D utility values in patients with primary sclerosing cholangitis.
      aug:
        au:
          Kalaitzakis, Evangelos
          Benito de Valle, Maria
          Rahman, Monira
          Lindkvist, Björn
          Björnsson, Einar
          Chapman, Roger
          Kontodimopoulos, Nick
          Lindkvist, Björn
          Björnsson, Einar
        affil: Institute of Internal Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg Sweden
      sug:
        subj:
          Health Status
          Liver Diseases Psychosocial Factors
          Algorithms
          Cholangitis, Sclerosing Psychosocial Factors
          Quality of Life Psychosocial Factors
          Middle Age
          Male
          Human
          Regression
          Liver Transplantation
          Cost Benefit Analysis
          Prospective Studies
          Cholangitis, Sclerosing Surgery
          Models, Theoretical
          Liver Diseases Surgery
          Female
          Validation Studies
          Comparative Studies
          Evaluation Research
          Multicenter Studies
          Short Form-36 Health Survey (SF-36)
          Questionnaires
          Middle Aged: 45-64 years
          Male
          Female
      ab: Purpose: The chronic liver disease questionnaire (CLDQ) is a frequently used liver-specific quality of life instrument, but it does not provide information on preference-adjusted health status, which is essential for cost-utility analysis. We aimed to develop a mapping function deriving utilities from the CLDQ in primary sclerosing cholangitis (PSC).Methods: Short form-6D (SF-6D) utilities were calculated from SF-36 data collected in a recent prospective study in which unselected patients with PSC also completed the CLDQ. Ordinary least squares (OLS), generalized linear, median, and kernel regression analyses were employed to devise a mapping function predicting utilities. This was validated in three random subsamples of the cohort and in a separate sample of PSC patients following liver transplantation. Adjusted R (2) and root-mean-square error (RMSE) as well as Pearson's r coefficients and mean absolute errors between predicted and observed values were used to determine model performance.Results: Decompensated liver disease and fatigue, systemic symptoms, and emotional distress, assessed with the CLDQ, were related to worse SF-6D utilities. The final OLS prediction model explained 66.3 % of the variance in the derivation sample. Predicted and observed utilities were strongly correlated (r = 0.807, p < 0.001), but the mean absolute error (0.0604) and adjusted RMSE (10.6 %) were of intermediate size. Similar model characteristics were observed after employment of generalized linear and median regression models and at validation.Conclusions: A model has been constructed, showing good validity predicting SF-6D utilities from CLDQ scores at the group level in PSC. Further testing is required to externally validate the model.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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