Perception of young adults with sickle cell disease or sickle cell trait about participation in the CHOICES randomized controlled trial.
Aims To gain an in-depth understanding of the perceptions of young adults with sickle cell disease and sickle cell trait about parenthood and participating in the CHOICES randomized controlled trial that used computer-based, educational programmes. Background In the USA, there is insufficient educat...
| Publicado en: | Journal of Advanced Nursing (John Wiley & Sons, Inc.) Vol. 72; no. 6; pp. 1430 - 1441 |
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| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
John Wiley & Sons, Inc.
Jun2016
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=115159423&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 115159423 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03092402 LVDY jtl: Journal of Advanced Nursing (John Wiley & Sons, Inc.) issn: 03092402 maglogo: N pubinfo: dt: Jun2016 vid: 72 iid: 6 pid: 52269 pub: John Wiley & Sons, Inc. artinfo: ui: 115159423 115159423 115159423 10.1111/jan.12702 115159423 ppf: 1430 ppct: 11 formats: tig: atl: Perception of young adults with sickle cell disease or sickle cell trait about participation in the CHOICES randomized controlled trial. aug: au: Hershberger, Patricia E. Gallo, Agatha M. Molokie, Robert Thompson, Alexis A. Suarez, Marie L. Yao, Yingwei Wilkie, Diana J. affil: University of Illinois at Chicago, College of Nursing, Illinois, USA sug: subj: Anemia, Sickle Cell Familial and Genetic Reproductive Health Education Parenthood Health Knowledge Health Education Computer-Assisted Instruction Human Funding Source Sickle Cell Trait Randomized Controlled Trials Qualitative Studies Descriptive Research Semi-Structured Interview Thematic Analysis Content Analysis Multimedia Pretest-Posttest Design Questionnaires Interviews Interview Guides Male Female Adult Socioeconomic Factors Anemia, Sickle Cell Transmission Parenting Information Seeking Behavior Information Resources Internet Adult: 19-44 years Male Female ab: Aims To gain an in-depth understanding of the perceptions of young adults with sickle cell disease and sickle cell trait about parenthood and participating in the CHOICES randomized controlled trial that used computer-based, educational programmes. Background In the USA, there is insufficient education to assure that all young adults with sickle cell disease or sickle cell trait understand genetic inheritance risks and reproductive options to make informed reproductive decisions. To address this educational need, we developed a computer-based, multimedia program ( CHOICES) and reformatted usual care into a computer-based (e-Book) program. We then conducted a two-year randomized controlled trial that included a qualitative component that would deepen understanding of young adults' perceptions of parenthood and use of computer-based, educational programmes. Design A qualitative descriptive approach completed after a randomized controlled trial. Methods Sixty-eight men and women of childbearing age participated in semi-structured interviews at the completion of the randomized controlled trial from 2012-2013. Thematic content analysis guided the qualitative description. Results/findings Three main themes were identified: (1) increasing knowledge and new ways of thinking and behaving; (2) rethinking parenting plans; and (3) appraising the program design and delivery. Most participants reported increased knowledge and rethinking of their parenting plans and were supportive of computer-based learning. Some participants expressed difficulty in determining individual transmission risks. Conclusion Participants perceived the computer programs as beneficial to their learning. Future development of an Internet-based educational programme is warranted, with emphasis on providing tailored education or memory boosters about individual transmission risks. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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