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Childhood lymphoedema and ‘Lymphaletics’: overcoming barriers.

Primary lymphoedema is a complex condition that causes tissue swelling, usually in one or more of the limbs, but lymphatic drainage of the head, trunk or deeper organs may also be affected. It can manifest in swelling at any time from birth meaning there are a number of children affected by this con...

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Published in:British Journal of Nursing Vol. 25; no. 13; pp. 718 - 723
Main Author: Todd, Marie
Format: pictorial tables/charts Journal Article
Published: Mark Allen Holdings Limited 7/14/2016
Online Access:View this record in EBSCOhost
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      dt: 7/14/2016
      vid: 25
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      pub: Mark Allen Holdings Limited
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      tig:
        atl: Childhood lymphoedema and ‘Lymphaletics’: overcoming barriers.
      aug:
        au: Todd, Marie
        affil: Lymphoedema Clinical Nurse Specialist, NHS Greater Glasgow and Clyde, Gillian Craig, Chronic Oedema Specialist, NHS Grampian, Denise Hardy - CNS Lymphoedema/Clinical manager. Kendal Lymphology Centre, Kendal Cumbria
      sug:
        subj:
          Lymphedema In Infancy and Childhood
          Child
          Parents Psychosocial Factors
          Lymphedema Psychosocial Factors
          Lymphedema Organizations
          United Kingdom
          Child Health Services
          Sporting Events
          Child, Preschool
          Adolescence
          Child: 6-12 years
          Child, Preschool: 2-5 years
          Adolescent: 13-18 years
      ab: Primary lymphoedema is a complex condition that causes tissue swelling, usually in one or more of the limbs, but lymphatic drainage of the head, trunk or deeper organs may also be affected. It can manifest in swelling at any time from birth meaning there are a number of children affected by this condition. While it is rare in childhood there are too few professionals experienced in diagnosis and treatment, which results in delays in identification and referral to appropriate services for diagnosis and treatment. The Children’s Lymphoedema Special Interest Group (CLSIG) was formed in 2010 by a group of lymphoedema specialists in a bid to raise awareness, improve service provision, and enhance practitioner knowledge. One of the aims of the group was to deliver a ‘fun day’ (Lymphaletics) for children with lymphoedema and their families to encourage physical activity and social interaction with children who have similar problems, and to provide a source of parent-to-parent support. This article discusses the issues for children and their families, and the aims and format of the event.
      pubtype: Academic Journal
      doctype:
        pictorial
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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