Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects.
Purpose: The field of patient-centered outcomes research (PCOR) continues to develop. Patient-reported outcomes and, in particular the Patient-Reported Outcomes Measurement Information System (PROMIS) contribute complementary data to clinician-derived outcomes traditionally used in health decision-m...
| Publicado en: | Quality of Life Research Vol. 25; no. 8; pp. 2109 - 2117 |
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| Autores principales: | , , , , , , , , , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Springer Nature
Aug2016
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=116816447&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 116816447 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Aug2016 vid: 25 iid: 8 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 116816447 116816447 NLM26914103 116816447 10.1007/s11136-016-1246-1 NLM26914103 PMC4946989 [Available on 08/01/17] 116816447 ppf: 2109 ppct: 8 formats: fmt: @attributes: type: P tig: atl: Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects. aug: au: Bingham, Clifton Bartlett, Susan Merkel, Peter Mielenz, Thelma Pilkonis, Paul Edmundson, Lauren Moore, Emily Sabharwal, Rajeev Bingham, Clifton O 3rd Bartlett, Susan J Merkel, Peter A Mielenz, Thelma J Pilkonis, Paul A Sabharwal, Rajeev K affil: Division of Rheumatology, Johns Hopkins University, 5200 Eastern Avenue, MFL Center Tower Room 404 Baltimore 21224 USA sug: subj: Outcome Assessment Research, Medical Quality of Life Pilot Studies Scales Human Funding Source ab: Purpose: The field of patient-centered outcomes research (PCOR) continues to develop. Patient-reported outcomes and, in particular the Patient-Reported Outcomes Measurement Information System (PROMIS) contribute complementary data to clinician-derived outcomes traditionally used in health decision-making. However, there has been little work to understand how PROMIS measures may inform or be integrated into PCOR or clinical applications.Methods: Lead investigators from four pilot projects funded by the Patient-Centered Outcomes Research Institute (PCORI) collaborated to discuss lessons learned about the use of PROMIS in PCOR studies via virtual and in-person meetings. In addition, a qualitative data collection tool was used to assess the pilot projects' experiences.Results: Lessons learned from the pilot projects centered on practical elements of research design, such as choosing the right outcomes to study, considering the advantages and limitations of the PROMIS short forms and computer adaptive technology versions, planning ahead for a feasible data collection process, maintaining the focus on patients by ensuring that the research is truly patient-centered, and helping patients and providers make the most of PROMIS in care.Conclusion: The PCORI pilot projects demonstrated that PROMIS can be successfully used to conduct research that will help patients make decisions about their care. Interest in PCOR continues to grow and the lessons learned from these projects about the use of PROMIS will be helpful to investigators. Given the numerous benefits of PROMIS, implementing this tool in research and care will hopefully lead to significant progress in measuring health outcomes that are meaningful and relevant to all stakeholders. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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