Family Cohesion and Adaptation in Pediatric Chronic Conditions: The Missing Link of the Family's Condition Management.

The quality of family functioning has been considered an important predictor of adaptation in children with chronic conditions and their parents. Previous research suggests that beyond general family functioning, the specific experience of the family's condition management is paramount for understan...

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Publicado en:Journal of Child & Family Studies Vol. 25; no. 9; pp. 2820 - 2832
Autores principales: Mendes, Teresa, Crespo, Carla, Austin, Joan
Formato: Artículo
Publicado: Springer Nature Sep2016
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Acceso en línea:Ver este registro en EBSCOhost
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      dt: Sep2016
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        10.1007/s10826-016-0447-0
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        au:
          Mendes, Teresa
          Crespo, Carla
          Austin, Joan
        affil:
          Faculdade de Psicologia e Ciências da Educação da Universidade de Coimbra , Rua do Colégio Novo, Apartado 6153 3001-802 Coimbra Portugal
          Faculdade de Psicologia , Universidade de Lisboa , Lisbon Portugal
          School of Nursing , Indiana University , Indianapolis USA
      su:
        Portugal
        Chronic diseases & psychology
        Adaptability (Personality)
        Analysis of variance
        Self-evaluation
        Family relations
        Parent attitudes
        Children
        Analysis of covariance
        Chi-squared test
        Confidence intervals
        Statistical correlation
        Multivariate analysis
        Paired comparisons (Mathematics)
        Path analysis (Statistics)
        Research funding
        Statistical sampling
        Scale analysis (Psychology)
        Statistics
        Data analysis
        Data analysis software
        Descriptive statistics
      sug:
        subj:
          Chronic diseases & psychology
          Adaptability (Personality)
          Analysis of variance
          Self-evaluation
          Family relations
          Parent attitudes
          Children
          Portugal
          Marketing Research and Public Opinion Polling
          Analysis of covariance
          Chi-squared test
          Confidence intervals
          Statistical correlation
          Multivariate analysis
          Paired comparisons (Mathematics)
          Path analysis (Statistics)
          Research funding
          Statistical sampling
          Scale analysis (Psychology)
          Statistics
          Data analysis
          Data analysis software
          Descriptive statistics
      keyword:
        Adaptation
        Children and parents
        Family cohesion
        Family management
        Pediatric chronic conditions
        Adaptation
        Children and parents
        Family cohesion
        Family management
        Pediatric chronic conditions
      ab: The quality of family functioning has been considered an important predictor of adaptation in children with chronic conditions and their parents. Previous research suggests that beyond general family functioning, the specific experience of the family's condition management is paramount for understanding family members' adaptation. This study's first goal was to compare family functioning and parents' and children's adaptation outcomes across four chronic conditions: asthma, diabetes, epilepsy, and obesity. Secondly, we explored the mediating role of family life difficulties and parental mutuality, as two potential paths through which family cohesion is linked to family members' adaptation. A total of 263 parents of children (3-19 years old) with asthma ( n = 77), obesity ( n = 79), epilepsy ( n = 52) and diabetes ( n = 55) completed self-report measures of family cohesion, family life difficulty, parental mutuality, anxiety and depressive symptoms, and their children's health-related quality of life (HrQoL). The results showed that families of children with diabetes, obesity, and epilepsy were at higher risk of experiencing family difficulties and children's deteriorated HrQoL when compared to families of children with asthma. With regard to the links among study variables, although family cohesion had both a direct and indirect relationship with parental depressive symptoms, its links with parental anxiety symptoms and children's HrQoL were only indirect, through family life difficulty. These associations were consistent across the four clinical groups. These findings emphasize the relevance of family-centered interventions aimed at promoting family cohesion, parents' mutuality, and effective coping with the demands of pediatric chronic conditions.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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