Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health.
Objectives:To identify caregiver profiles of persons with mild to moderate dementia and to investigate differences between identified caregiver profiles, using baseline data of the international prospective cohort study Actifcare. Methods:A latent class analysis was used to discover different caregi...
| Published in: | Aging & Mental Health Vol. 21; no. 1; pp. 49 - 58 |
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| Main Authors: | , , , , , , , , , , , , , , , , , , , |
| Format: | Article |
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Taylor & Francis Ltd
Jan2017
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| Subjects: | |
| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=120794074&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 120794074 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 13607863 57E jtl: Aging & Mental Health issn: 13607863 maglogo: N pubinfo: dt: Jan2017 vid: 21 iid: 1 pid: 377 pub: Taylor & Francis Ltd artinfo: ui: 120794074 10.1080/13607863.2016.1255716 ppf: 49 ppct: 9 formats: tig: atl: Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health. aug: au: Janssen, Eveline P.C.J. de Vugt, Marjolein Köhler, Sebastian Wolfs, Claire Kerpershoek, Liselot Handels, Ron L.H. Orrell, Martin Woods, Bob Jelley, Hannah Stephan, Astrid Bieber, Anja Meyer, Gabriele Engedal, Knut Selbaek, Geir Wimo, Anders Irving, Kate Hopper, Louise Maria Marques Gonçalves-Pereira, Manuel Portolani, Elisa affil: Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The Netherlands Department of Old Age Psychiatry, Mondriaan, Heerlen, The Netherlands Department of Psychiatry and Applied Psychology, Faculty of Medicine & Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom Dementia Services Development Centre Wales, Bangor University, Bango, United Kingdom Medical Faculty, Institute for Health and Nursing Science, Halle-Wittenberg, Germany Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway Department of Neurobiology, Care sciences and Society, Karolinska Institut, Stockholm, Sweden School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland CEDOC – Chronic Diseases Research Center, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, Portugal Alzheimer Unit, IRCCS Centro San Giovanni di Dio, Fatebenefratelli, Brescia, Italy su: Germany United Kingdom Ireland Italy Netherlands Norway Portugal Sweden Quality of life Psychology of caregivers Mental depression Health status indicators Locus of control Classification of mental disorders Psychological tests Well-being Cross-sectional method Chi-squared test Comparative studies Dementia Latent structure analysis Longitudinal method Neuropsychological tests Probability theory Research funding Surveys T-test (Statistics) Time Mathematical variables Visual analog scale Data analysis software Descriptive statistics sug: subj: Quality of life Psychology of caregivers Mental depression Health status indicators Locus of control Classification of mental disorders Psychological tests Well-being Cross-sectional method Germany United Kingdom Ireland Italy Netherlands Norway Portugal Sweden Chi-squared test Comparative studies Dementia Latent structure analysis Longitudinal method Neuropsychological tests Probability theory Research funding Surveys T-test (Statistics) Time Mathematical variables Visual analog scale Data analysis software Descriptive statistics keyword: caregivers quality of life social health well-being caregivers quality of life social health well-being ab: Objectives:To identify caregiver profiles of persons with mild to moderate dementia and to investigate differences between identified caregiver profiles, using baseline data of the international prospective cohort study Actifcare. Methods:A latent class analysis was used to discover different caregiver profiles based on disease related characteristics of 453 persons with dementia and their 453 informal caregivers. These profiles were compared with regard to quality of life (CarerQoL score), depressive symptoms (HADS-D score) and perseverance time. Results:A 5-class model was identified, with the best Bayesian Information Criterion value, significant likelihood ratio test (p< 0.001), high entropy score (0.88) and substantive interpretability. The classes could be differentiated on two axes: (i) caregivers' age, relationship with persons with dementia, severity of dementia, and (ii) tendency towards stress and difficulty adapting to stress. Classes showed significant differences with all dependent variables, and were labelled ‘older low strain’, ‘older intermediate strain’, ‘older high strain’, ‘younger low strain’ and ‘younger high strain’. Conclusion:Differences exist between types of caregivers that explain variability in quality of life, depressive symptoms and perseverance time. Our findings may give direction for tailored interventions for caregivers of persons with dementia, which may improve social health and reduce health care costs. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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