Home tele-rehabilitation for rheumatic patients: impact and satisfaction of care analysis.

Introduction In this paper, we evaluated patients' perspectives on the use of a system for home tele-rehabilitation, designed for subjects with low computer literacy suffering hand impairment due to rheumatic diseases. Methods After a clinical trial assessing device effectiveness, the Psychosocial I...

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Publicado en:Journal of Telemedicine & Telecare Vol. 23; no. 2; pp. 292 - 301
Autores principales: Pani, D., Piga, M., Barabino, G., Crabolu, M., Uras, S., Mathieu, A., Raffo, L.
Formato: research randomized controlled trial Journal Article
Publicado: Sage Publications Inc. Feb2017
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Feb2017
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      pub: Sage Publications Inc.
      place: Thousand Oaks, California
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        10.1177/1357633X16632950
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        atl: Home tele-rehabilitation for rheumatic patients: impact and satisfaction of care analysis.
      aug:
        au:
          Pani, D.
          Piga, M.
          Barabino, G.
          Crabolu, M.
          Uras, S.
          Mathieu, A.
          Raffo, L.
        affil: DIEE – Department of Electrical and Electronic Engineering, University of Cagliari, Italy
      sug:
        subj:
          Rheumatic Diseases Rehabilitation
          Patient Satisfaction
          Male
          Female
          Middle Age
          Human
          Validation Studies
          Comparative Studies
          Evaluation Research
          Multicenter Studies
          Randomized Controlled Trials
          Questionnaires
          Scales
          Middle Aged: 45-64 years
          Male
          Female
      ab: Introduction In this paper, we evaluated patients' perspectives on the use of a system for home tele-rehabilitation, designed for subjects with low computer literacy suffering hand impairment due to rheumatic diseases. Methods After a clinical trial assessing device effectiveness, the Psychosocial Impact of Assistive Devices Scale (PIADS), Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST) and Individually Prioritised Problem Assessment (IPPA) questionnaires were administered to evaluate the system's impact on each patient's life, and the results were correlated with clinical indices. Patients were asked to continue self-administered rehabilitation with common objects. One year later, a semi-structured telephone interview gathered data on their experience. Results The system received a positive QUEST score (4.5 ± 0.3) and a modest PIADS score (0.84 ± 0.8) due to the small impact on adaptability and self-esteem. The IPPA (3.7 ± 3.4) revealed improvement in the ability to perform tasks considered important, which was significantly correlated ( r = 0.60; p < 0.02) with the clinical Health Assessment Questionnaire (HAQ) index improvement. The interviews revealed a positive engagement effect, enhanced by the need to develop skills to be able to use the device (technological challenge) and by the perception of more attention by the medical staff. This may explain the significant dropout rate (80%) from the post-trial rehabilitation of the patients who used the device. Discussion The system was largely accepted by the patients. The results suggest that the need for information on their rehabilitation progress and the technological challenge deserves further study to make patients more autonomous in cases of continuous rehabilitation.
      pubtype: Academic Journal
      doctype:
        research
        randomized controlled trial
        Journal Article
      ougenre: Article
    language: English
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