'It's different, but it's the same': perspectives of young adults with siblings with intellectual disabilities in residential care.
Accessible summary Siblings often play important roles in the lives of people with intellectual disabilities., This study suggests that young adults who have siblings in residential care can feel isolated in their experience., Adolescence appears to be a turning point and a time when siblings become...
| Publicado en: | British Journal of Learning Disabilities Vol. 45; no. 1; pp. 12 - 21 |
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| Autores principales: | , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Mar2017
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=120966538&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 120966538 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13544187 F04 jtl: British Journal of Learning Disabilities issn: 13544187 maglogo: Y pubinfo: dt: Mar2017 vid: 45 iid: 1 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 120966538 120966538 120966538 10.1111/bld.12169 120966538 ppf: 12 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: 'It's different, but it's the same': perspectives of young adults with siblings with intellectual disabilities in residential care. aug: au: Jacobs, Paula MacMahon, Ken affil: The School of Health in Social Science, Doorway 6, Medical School, Teviot Place, Edinburgh, EH8 9AG, UK sug: subj: Intellectual Disability Psychosocial Factors Residential Facilities Siblings Attitude Human Social Isolation Caregivers Support, Psychosocial Semi-Structured Interview Phenomenological Research Young Adult Family Interpersonal Relations Narratives Purposive Sample Adolescence Male Female Interviews Data Analysis Software Adolescent: 13-18 years Male Female ab: Accessible summary Siblings often play important roles in the lives of people with intellectual disabilities., This study suggests that young adults who have siblings in residential care can feel isolated in their experience., Adolescence appears to be a turning point and a time when siblings become aware of future caretaking responsibilities., There is a need for support for siblings of children and adults with intellectual disabilities who live in residential care., Abstract Background: Siblings often play significant roles in the lives of people with intellectual disabilities. This study aimed to give voice to young adults whose siblings have an intellectual disability and are in residential care. Materials and Methods: Six participants were interviewed, with interpretative phenomenological analysis methodology employed. Results: Emergent themes included family and sibling relationships and concerns for the future. However, ambivalence, in terms of conflicting feelings within participants themselves, was striking. Dissonances within narratives included identifying as 'one family' whilst living apart, experiencing guilt while being supportive of the residential placement, and emphasising the normality of the sibling experience whilst also feeling different and isolated. Conclusion: These findings reflect the particular complexity of sibling relationships when the person with an intellectual disability lives in residential care. There is a need to understand more about the perspectives of siblings, and the influence that residential care may have upon these. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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