Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers.
Purpose: Informal caregivers of individuals with cancer may experience substantial burdens. To develop interventions to support these caregivers, it is crucial to quantify and understand the domains of burdens potentially experienced by caregivers and factors contributing to each domain.Methods: Usi...
| Publicado en: | Quality of Life Research Vol. 26; no. 6; pp. 1587 - 1596 |
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| Autores principales: | , , , , , |
| Formato: | Journal Article |
| Publicado: |
Springer Nature
Jun2017
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=122898017&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 122898017 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Jun2017 vid: 26 iid: 6 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 122898017 122898017 144138601 NLM28210993 10.1007/s11136-017-1505-9 NLM28210993 122898017 ppf: 1587 ppct: 9 formats: fmt: @attributes: type: P tig: atl: Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers. aug: au: Halpern, Michael Fiero, Mallorie Bell, Melanie Halpern, Michael T Fiero, Mallorie H Bell, Melanie L affil: Health Services Administration and Policy , Temple University College of Public Health , 1301 Cecil B. Moore Ave., #533 Philadelphia 19122 USA sug: subj: Neoplasms Therapy Caregivers Psychosocial Factors Quality of Life Psychosocial Factors Support, Psychosocial Aged Young Adult Female Aged, 80 and Over Middle Age Male United States Health Services Adult Interview Guides Aged: 65+ years Aged, 80 & over Middle Aged: 45-64 years Adult: 19-44 years Female Male ab: Purpose: Informal caregivers of individuals with cancer may experience substantial burdens. To develop interventions to support these caregivers, it is crucial to quantify and understand the domains of burdens potentially experienced by caregivers and factors contributing to each domain.Methods: Using data from two national surveys, the National Survey of Caregiving (NSOC) linked to the National Health and Aging Trends Survey (NHATS), we identified all participants in the NHATS diagnosed with cancer who had a caregiver participating in the NSOC. Guided by a theoretical model, twenty-two items in the NSOC related to caregiver health, mood and outlook were included in factor analysis to develop scales capturing domains of burden. Multivariable regression analyses examined whether activities performed by caregivers and supports for caregivers were associated with these burden scales.Results: Analysis of responses from 373 caregivers of cancer patients identified three scales: emotional burden; psychological burden; and relationship with the patient. Providing assistance managing medical care was associated with increased emotional and psychological burden, while assistance with non-medical issues increased psychological burden and worsened relationships with patients. Caregiver provision of direct patient care activities was also associated with increased burden but improved relationships with patients. Use of caregiver supports showed mixed associations with burden.Conclusions: Using a nationally-representative sample of cancer patients and their caregivers and brief publicly-available survey questions, we present three scales addressing different aspects of caregiver burden that are responsive to caregiver activities and social supports. This may assist in developing and evaluating intervention to decrease caregiver burden. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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