When Does Therapeutic Misconception Affect Surrogates’ or Subjects’ Decision Making about Whether to Participate in Dementia Research?
“Therapeutic misconception” (TM) refers to inappropriate assumptions and beliefs on the part of research participants regarding key distinctions between the purpose, methods, intended benefits, and potential disadvantages of research compared to those of clinical care. Despite an extensive literatur...
| Publicado en: | AMA Journal of Ethics Vol. 19; no. 7; pp. 678 - 686 |
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| Autores principales: | , |
| Formato: | Journal Article |
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American Medical Association
Jul2017
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=123970964&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 123970964 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 23766980 IT3R jtl: AMA Journal of Ethics issn: 23766980 maglogo: N pubinfo: dt: Jul2017 vid: 19 iid: 7 pid: 10281 pub: American Medical Association place: Chicago, Illinois artinfo: ui: 123970964 10.1001/journalofethics.2017.19.7.nlit1-1707 123970964 ppf: 678 ppct: 8 formats: tig: atl: When Does Therapeutic Misconception Affect Surrogates’ or Subjects’ Decision Making about Whether to Participate in Dementia Research? aug: au: Dunn, Laura B. Palmer, Barton W. affil: Professor of psychiatry in the Department of Psychiatry and Behavioral Sciences at Stanford University in Palo Alto, California. sug: subj: Dementia Research, Medical Research Subjects Decision Making Cognition Durable Power of Attorney Consent (Research) Functional Status ab: “Therapeutic misconception” (TM) refers to inappropriate assumptions and beliefs on the part of research participants regarding key distinctions between the purpose, methods, intended benefits, and potential disadvantages of research compared to those of clinical care. Despite an extensive literature describing TM across varied types of research and populations, minimal work has addressed TM in the context of dementia research. This is a serious gap, for several reasons: people with dementia are at significant risk of diminished capacity; surrogate decision makers are typically asked to provide consent on behalf of the person with dementia; and available treatments for dementia are quite limited. More research is needed on the prevalence, nature, and impact of TM in the context of clinical dementia research. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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