Living with persistent rheumatoid arthritis: a BARFOT study.
Aim and objective To describe and understand the meaning of living with persistent rheumatoid arthritis. Background A considerable number of patients with rheumatoid arthritis live with an ongoing active and symptomatic illness despite access to potent antirheumatic treatment. There is, however, a l...
| Publicado en: | Journal of Clinical Nursing (John Wiley & Sons, Inc.) Vol. 26; no. 17-18; pp. 2646 - 2657 |
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| Autores principales: | , , , , , , |
| Formato: | Journal Article |
| Publicado: |
John Wiley & Sons, Inc.
Sep2017
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=124486109&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 124486109 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09621067 LVDZ jtl: Journal of Clinical Nursing (John Wiley & Sons, Inc.) issn: 09621067 maglogo: N pubinfo: dt: Sep2017 vid: 26 iid: 17-18 pid: 52269 pub: John Wiley & Sons, Inc. artinfo: ui: 124486109 10.1111/jocn.13691 124486109 ppf: 2646 ppct: 11 formats: tig: atl: Living with persistent rheumatoid arthritis: a BARFOT study. aug: au: Bala, Sidona‐Valentina Samuelson, Karin Hagell, Peter Fridlund, Bengt Forslind, Kristina Svensson, Björn Thomé, Bibbi affil: Department of Health Sciences, Lund University, Lund Sweden sug: subj: Arthritis, Rheumatoid Patient Centered Care Patient Attitudes Evaluation Human Phenomenological Research Descriptive Research Interviews Thematic Analysis Sweden Life Experiences Audiorecording Time Factors Pain Fatigue Qualitative Validity Male Female Middle Age Aged Funding Source Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Aim and objective To describe and understand the meaning of living with persistent rheumatoid arthritis. Background A considerable number of patients with rheumatoid arthritis live with an ongoing active and symptomatic illness despite access to potent antirheumatic treatment. There is, however, a lack of knowledge about the meaning of living with this severe long-term illness, defined as persistent rheumatoid arthritis. Design A descriptive design based on a hermeneutic phenomenological method was used. Methods Ten adults with persistent rheumatoid arthritis and at least five years disease duration were interviewed. The interviews were analysed according to van Manen's method. Results Living with persistent rheumatoid arthritis revealed four overall themes: an existence dominated by painful symptoms and treatment, radical changes and limitations in one's life, a continual struggle to cope with one's life and to master the illness, and a dependency on those who are close by and the world around. The lifeworld was affected to a varying extent and in various ways by the illness but also by the dependence on its treatment and care that was not experienced as sufficiently meeting needs in terms of security, access to and coordination of care as well as team and rehabilitation services. Conclusions Persistent rheumatoid arthritis and its treatment entail a radical effect on the person's life and quality of life. Current ordinary rheumatology care does not seem to meet the individual needs of the person with persistent rheumatoid arthritis in an optimal way. Relevance to clinical practice A greater knowledge about and understanding of the person who lives with persistent rheumatoid arthritis is important for facilitating the development of care and the relief of suffering. A holistic alternative to conventional clinical practice, such as person-centred care, could be tested as an innovative model of care. Our findings might serve as material for educational and counselling purposes for healthcare professionals. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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