Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors' social participation.
Purpose: Measuring the impact burn injuries have on social participation is integral to understanding and improving survivors' quality of life, yet there are no existing instruments that comprehensively measure the social participation of burn survivors. This project aimed to develop the Life Impact...
| Publicado en: | Quality of Life Research Vol. 26; no. 10; pp. 2851 - 2867 |
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| Autores principales: | , , , , , , , , , , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Springer Nature
Oct2017
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=125130486&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 125130486 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Oct2017 vid: 26 iid: 10 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 125130486 125130486 144109824 NLM28493205 125130486 10.1007/s11136-017-1588-3 NLM28493205 125130486 ppf: 2851 ppct: 16 formats: fmt: @attributes: type: P tig: atl: Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors' social participation. aug: au: Kazis, Lewis Marino, Molly Ni, Pengsheng Soley Bori, Marina Amaya, Flor Dore, Emily Ryan, Colleen Schneider, Jeff Shie, Vivian Acton, Amy Jette, Alan Kazis, Lewis E Ryan, Colleen M Schneider, Jeff C Jette, Alan M affil: Department of Health Law, Policy, and Management, Center for the Assessment of Pharmaceutical Practices (CAPP) , Boston University School of Public Health , Boston USA sug: subj: Burns Rehabilitation Social Participation Psychosocial Factors Quality of Life Psychosocial Factors Male Female Adult Survivors Middle Age Funding Source Human Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Purpose: Measuring the impact burn injuries have on social participation is integral to understanding and improving survivors' quality of life, yet there are no existing instruments that comprehensively measure the social participation of burn survivors. This project aimed to develop the Life Impact Burn Recovery Evaluation Profile (LIBRE), a patient-reported multidimensional assessment for understanding the social participation after burn injuries.Methods: 192 questions representing multiple social participation areas were administered to a convenience sample of 601 burn survivors. Exploratory factor analysis and confirmatory factor analysis (CFA) were used to identify the underlying structure of the data. Using item response theory methods, a Graded Response Model was applied for each identified sub-domain. The resultant multidimensional LIBRE Profile can be administered via Computerized Adaptive Testing (CAT) or fixed short forms.Results: The study sample included 54.7% women with a mean age of 44.6 (SD 15.9) years. The average time since burn injury was 15.4 years (0-74 years) and the average total body surface area burned was 40% (1-97%). The CFA indicated acceptable fit statistics (CFI range 0.913-0.977, TLI range 0.904-0.974, RMSEA range 0.06-0.096). The six unidimensional scales were named: relationships with family and friends, social interactions, social activities, work and employment, romantic relationships, and sexual relationships. The marginal reliability of the full item bank and CATs ranged from 0.84 to 0.93, with ceiling effects less than 15% for all scales.Conclusions: The LIBRE Profile is a promising new measure of social participation following a burn injury that enables burn survivors and their care providers to measure social participation. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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