Technology-assisted self-testing and management of oral anticoagulation therapy: a qualitative patient-focused study.

Background Oral anticoagulation therapy requires regular blood testing to ensure therapeutic levels are maintained and excessive bleeding/clotting is avoided. Technology-assisted self-testing and management is seen as one of the key areas in which quality of care can be improved whilst reducing cost...

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Published in:Scandinavian Journal of Caring Sciences Vol. 31; no. 3; pp. 603 - 618
Main Authors: Kuljis, Jasna, Money, Arthur G., Perry, Mark, Barnett, Julie, Young, Terry
Format: pictorial research tables/charts Journal Article
Published: Wiley-Blackwell Sep2017
Online Access:View this record in EBSCOhost
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      dt: Sep2017
      vid: 31
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        10.1111/scs.12374
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        atl: Technology-assisted self-testing and management of oral anticoagulation therapy: a qualitative patient-focused study.
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          Kuljis, Jasna
          Money, Arthur G.
          Perry, Mark
          Barnett, Julie
          Young, Terry
        affil: Department of Computer Science, Brunel University, London UK
      sug:
        subj:
          Anticoagulants Administration and Dosage
          Home Diagnostic Tests Equipment and Supplies
          Self Care
          Venous Thrombosis Drug Therapy
          Pulmonary Embolism Drug Therapy
          Thrombosis Prevention and Control
          International Normalized Ratio
          Human
          Qualitative Studies
          Funding Source
          Semi-Structured Interview
          Cost Benefit Analysis
          Thematic Analysis
          Coding
          Motivation
          Convenience Sample
          Male
          Female
          Middle Age
          Aged
          Data Analysis Software
          Telephone
          Trust
          Middle Aged: 45-64 years
          Aged: 65+ years
          Male
          Female
      ab: Background Oral anticoagulation therapy requires regular blood testing to ensure therapeutic levels are maintained and excessive bleeding/clotting is avoided. Technology-assisted self-testing and management is seen as one of the key areas in which quality of care can be improved whilst reducing costs. Nevertheless, levels of patient engagement in self-testing and management remain low. To date, little research emphasis has been placed on understanding the patients' perspectives for low engagement. The typical approach adopted by healthcare providers is to provide patient education programmes, with the expectation that individual patients will change their behaviour and adopt new self-care strategies. However, if levels of patient engagement are to be increased, healthcare providers must also develop a better understanding of how their clinical service provision is perceived by patients and make adaptations. Objective To explore patient views, needs and expectations of an anticoagulation service and the self-testing and management services provided. Methods Interviews were conducted with 17 patients who currently engage in international normalised ratio ( INR) self-testing and management. Thematic coding and analysis were carried out on the interview transcripts. Results Four high-level themes emerged from interviews: (i) role of clinic, (ii) motivations for self-testing, (iii) managing INR and (iv) trust. The clinic was seen as adding value in terms of specifying testing frequency, dosage profiles and calibrating equipment. Prompt communication from clinic to patient was also valued, although more personalised/real-time communication would help avoid feelings of isolation. Patients felt more in control as self-tester/managers and often took decisions about treatment adjustments themselves. However, some also manipulated their own test results to avoid 'unnecessary' interventions. Conclusions and recommendations More personalised/real-time communication, pragmatic and collaborative patient-clinician partnerships and recognition of expert patient knowledge and expertise are needed if increased levels of engagement with self-testing and management service provision is to be realised.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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