Misleading by Omission: Rethinking the Obligation to Inform Research Subjects about Funding Sources.

Informed consent requirements for medical research have expanded over the past half-century. The Declaration of Helsinki now includes an explicit positive obligation to inform subjects about funding sources. This is problematic in a number of ways and seems to oblige researchers to disclose informat...

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Publicado en:Journal of Medicine & Philosophy Vol. 42; no. 6; pp. 720 - 740
Autor principal: MANSON, NEIL C.
Formato: Journal Article
Publicado: Oxford University Press / USA Dec2017
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Oxford University Press / USA
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        atl: Misleading by Omission: Rethinking the Obligation to Inform Research Subjects about Funding Sources.
      aug:
        au: MANSON, NEIL C.
        affil: Lancaster University, Lancaster, United Kingdom
      su:
        Informed consent (Medical law)
        Medical research
        Research funding
        World Medical Association. Declaration of Helsinki
        Research ethics
      sug:
        subj:
          Informed consent (Medical law)
          Medical research
          Research funding
          World Medical Association. Declaration of Helsinki
          Research ethics
      keyword:
        Declaration of Helsinki
        disclosure
        informed consent
        obligation to inform
        research ethics
      ab: Informed consent requirements for medical research have expanded over the past half-century. The Declaration of Helsinki now includes an explicit positive obligation to inform subjects about funding sources. This is problematic in a number of ways and seems to oblige researchers to disclose information irrelevant to most consent decisions. It is argued here that such a problematic obligation involves an "informational fallacy." The aim in the second part of the paper is to provide a better approach to making sense of how a failure to inform about funding sources wrongs subjects: by making appeals to obligations to refrain from misleading by omission. This alternative approach-grounded in a general obligation to refrain from misleading, an obligation that is independent of informed consent-provides a basis for a norm that protects subjects' interests, without the informational fallacy. The approach developed here avoids the problems identified with the currently specified general obligation to inform about funding sources.
      pubtype: Academic Journal
      doctype: Journal Article
      src: R
    language: English
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