Parents’ experiences of professionals’ involvement for children with extreme demand avoidance.
Objectives:Pathological demand avoidance (PDA) is characterized by an extreme difficulty in tolerating everyday demands, with a range of ‘socially manipulative’ strategies used to avoid demands. Children also display poor social identity, impulsivity, and obsessive behavior. While research and knowl...
| Publicado en: | International Journal of Developmental Disabilities Vol. 64; no. 1; pp. 16 - 25 |
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| Autores principales: | , |
| Formato: | forms research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Jan2018
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=126975333&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 126975333 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 20473869 F2SP jtl: International Journal of Developmental Disabilities issn: 20473869 maglogo: N pubinfo: dt: Jan2018 vid: 64 iid: 1 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 126975333 126975333 126975333 10.1080/20473869.2016.1204743 126975333 ppf: 16 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Parents’ experiences of professionals’ involvement for children with extreme demand avoidance. aug: au: Gore Langton, Emma Frederickson, Norah affil: Educational Psychology Group, Department of Psychology, University College London, 26 Bedford Way, LondonWC1H 0AP, UK sug: subj: Parental Attitudes Professional Role Autism Spectrum Disorder In Infancy and Childhood Human Questionnaires Sensitivity and Specificity Thematic Analysis Extended Family Child Patient Satisfaction Psychological Well-Being Child: 6-12 years ab: Objectives:Pathological demand avoidance (PDA) is characterized by an extreme difficulty in tolerating everyday demands, with a range of ‘socially manipulative’ strategies used to avoid demands. Children also display poor social identity, impulsivity, and obsessive behavior. While research and knowledge about PDA is slowly growing, families continue to encounter considerable difficulties in ensuring their children’s needs are understood and met by health and education services. This study explored what parents of children with extreme demand avoidance valued about professionals’ input. Methods:Parents of 42 children who scored above the cut-off on a standardized measure with validated sensitivity and specificity for PDA responded to questionnaire items asking them to identify professionals’ involvement and helpfulness. They were also asked what had characterized the most helpful professional involvement. Thematic analysis was used to identify the key themes in parents’ responses. Results:Families tended to have high levels of professional involvement. Most professionals were experienced as helpful by the majority of parents. Three main themes were identified as characterizing helpful involvement: enabling access to services and resources, concrete outcomes such assessments and management strategies, and professional-level factors such as skills and qualities. Conclusions:Parents felt positive about practitioners who had listened to their experiences, made efforts to understand the child, and provided or arranged for help. Parents found involvement most helpful when it resulted in comprehensive assessment, appropriate intervention, practical advice and management strategies, and a focus on the well-being of all family members. The overall ratings of helpfulness are encouraging, and the specific feedback about what is most helpful could be of value in shaping services. pubtype: Academic Journal doctype: forms research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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