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Cerberus, an Access Control Scheme for Enforcing Least Privilege in Patient Cohort Study Platforms.

Cohort Study Platforms (CSP) are emerging as a key tool for collecting patient information, providing new research data, and supporting family and patient associations. However they pose new ethics and regulatory challenges since they cross the gap between patients and medical practitioners. One of...

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Published in:Journal of Medical Systems Vol. 42; no. 1; pp. 1 - 20
Main Authors: Parrend, Pierre, Mazzucotelli, Timothée, Colin, Florent, Collet, Pierre, Mandel, Jean-Louis
Format: computer program equations & formulas pictorial tables/charts Journal Article
Published: Springer Nature Jan2018
Online Access:View this record in EBSCOhost
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      pub: Springer Nature
      place: New York, New York
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        10.1007/s10916-017-0844-y
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        atl: Cerberus, an Access Control Scheme for Enforcing Least Privilege in Patient Cohort Study Platforms.
      aug:
        au:
          Parrend, Pierre
          Mazzucotelli, Timothée
          Colin, Florent
          Collet, Pierre
          Mandel, Jean-Louis
        affil: ECAM Strasbourg-Europe, 2 Rue de Madrid, 67300, Schiltigheim, France
      sug:
        subj:
          Research, Medical
          Access to Information
          Intellectual Disability Familial and Genetic
          Autism Spectrum Disorder Familial and Genetic
          Software
          Prospective Studies
      ab: Cohort Study Platforms (CSP) are emerging as a key tool for collecting patient information, providing new research data, and supporting family and patient associations. However they pose new ethics and regulatory challenges since they cross the gap between patients and medical practitioners. One of the critical issues for CSP is to enforce a strict control on access privileges whilst allowing the users to take advantage of the breadth of the available data. We propose Cerberus, a new access control scheme spanning the whole life-cycle of access right management: design, implementation, deployment and maintenance, operations. Cerberus enables switching from a dual world, where CSP data can be accessed either from the users who entered it or fully de-identified, to an access-when-required world, where patients, practitioners and researchers can access focused medical data through explicit authorisation by the data owner. Efficient access control requires application-specific access rights, as well as the ability to restrict these rights when they are not used. Cerberus is implemented and evaluated in the context of the GENIDA project, an international CSP for Genetically determined Intellectual Disabilities and Autism Spectrum Disorders. As a result of this study, the software is made available for the community, and validated specifications for CSPs are given.
      pubtype: Academic Journal
      doctype:
        computer program
        equations & formulas
        pictorial
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        Journal Article
      ougenre: Article
    language: English
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