Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders.
Background: The treatment of bleeding disorders improved in the last decades. However, the effect of growing up with bleeding disorders on developmental, emotional, and social aspects is understudied. Therefore, this study assesses HRQOL, developmental milestones, and self-esteem in Dutch young adul...
| Publicado en: | Quality of Life Research Vol. 27; no. 1; pp. 159 - 172 |
|---|---|
| Autores principales: | , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Springer Nature
Jan2018
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=127379439&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 127379439 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Jan2018 vid: 27 iid: 1 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 127379439 127379439 143931686 NLM28900823 127379439 10.1007/s11136-017-1696-0 NLM28900823 127379439 ppf: 159 ppct: 13 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders. aug: au: Limperg, P. F. Haverman, L. Maurice-Stam, H. Coppens, M. Valk, C. Kruip, M. J. H. A. Eikenboom, J. Peters, M. Grootenhuis, M. A. affil: Psychosocial Department, Emma Children’s Hospital, AMC, Postbox 22660, 1100 DD, Amsterdam, The Netherlands sug: subj: Quality of Life Psychosocial Factors Self Concept Hemorrhagic Diathesis Epidemiology Achievement Young Adult Female Hemorrhagic Diathesis Pathology Male Adolescence Adult Comparative Studies Scales Rosenberg Self Esteem Scale Questionnaires Human Adolescent: 13-18 years Adult: 19-44 years Female Male ab: Background: The treatment of bleeding disorders improved in the last decades. However, the effect of growing up with bleeding disorders on developmental, emotional, and social aspects is understudied. Therefore, this study assesses HRQOL, developmental milestones, and self-esteem in Dutch young adults (YA) with bleeding disorders compared to peers.Methods: Ninety-five YA (18-30 years) with bleeding disorders (78 men; mean 24.7 years, SD 3.5) and 17 women (mean 25.1 years, SD 3.8) participated and completed the Pediatric Quality of Life Inventory Young Adult version, the Course of Life Questionnaire, and the Rosenberg Self-Esteem Scale. Differences between patients with bleeding disorders and their peers, and between hemophilia severity groups, were tested using Mann-Whitney U tests.Results: YA men with bleeding disorders report a slightly lower HRQOL on the total scale, physical functioning, and school/work functioning in comparison to healthy peers (small effect sizes). YA men with severe hemophilia report more problems on the physical functioning scale than non-severe hemophilia. YA men with bleeding disorders achieved more psychosexual developmental milestones than peers, but show a delay in 'paid jobs, during middle and/or high school.' A somewhat lower self-esteem was found in YA men with bleeding disorders in comparison to peers (small effect size). For YA women with bleeding disorders, no differences were found on any of the outcomes in comparison to peers.Conclusion: This study demonstrates some impairments in HRQOL and self-esteem in YA men with bleeding disorders. By monitoring HRQOL, problems can be identified early, especially with regard to their physical and professional/school functioning. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|