Agreement between self-reported and register-based cardiovascular events among Danish breast cancer survivors.
Purpose: We examined the degree of over- and under-reporting of cardiovascular diseases (CVDs) among female breast cancer survivors comparing self-reports to diagnostic codes from the Danish National Patient Register (NPR).Methods: The study comprised 357 Danish breast cancer patients from the WECAR...
| Publicado en: | Journal of Cancer Survivorship Vol. 12; no. 1; pp. 95 - 101 |
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| Autores principales: | , , , , , , , , , , , , |
| Formato: | Journal Article |
| Publicado: |
Springer Nature
Feb2018
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=127706973&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 127706973 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 19322259 46CU jtl: Journal of Cancer Survivorship issn: 19322259 maglogo: N pubinfo: dt: Feb2018 vid: 12 iid: 1 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 127706973 127706973 144166567 NLM28963606 10.1007/s11764-017-0648-6 NLM28963606 127706973 ppf: 95 ppct: 6 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Agreement between self-reported and register-based cardiovascular events among Danish breast cancer survivors. aug: au: Langballe, Rikke John, Esther M. Malone, Kathleen E. Bernstein, Leslie Knight, Julia A. Lynch, Charles F. Howell, Rebecca M. Shore, Roy Woods, Meghan Concannon, Patrick The WECARE Study Collaborative Group Bernstein, Jonine L Mellemkjær, Lene affil: Danish Cancer Society Research Center, Strandboulevarden 49, 2100, Copenhagen, Denmark sug: subj: Cardiovascular Diseases Etiology Breast Neoplasms Complications Cardiovascular Diseases Pathology Sweden Validation Studies Female Middle Age Self Report Data Collection Cardiovascular Diseases Epidemiology Ferrans and Powers Quality of Life Index Middle Aged: 45-64 years Female ab: Purpose: We examined the degree of over- and under-reporting of cardiovascular diseases (CVDs) among female breast cancer survivors comparing self-reports to diagnostic codes from the Danish National Patient Register (NPR).Methods: The study comprised 357 Danish breast cancer patients from the WECARE study who completed a telephone interview concerning CVDs. Disease diagnoses for these women were obtained from the NPR. Agreement was calculated as the number of diagnoses that were both self-reported and in the NPR divided by (1) number of self-reported diagnoses (over-reporting) or (2) number of diagnoses in the NPR (under-reporting).Results: In total, 68 women reported 96 specific cardiovascular outcomes of which 56 (58%) were found in the NPR. Ninety cardiovascular diagnoses were found in the NPR of which 56 (62%) were specifically reported at the interview. There was 80% agreement as to the occurrence of a cardiovascular diagnosis overall. Of 289 women reporting no CVD, 273 (94%) had no diagnoses in the NPR.Conclusions: Breast cancer survivors seem to report absence of CVD accurately, but they both over-report and under-report specific cardiovascular diagnoses. Using a broader definition of CVDs improves the agreement between self-reported and NPR data.Implications For Cancer Survivors: Determining how cancer treatments affect the risk of cardiovascular morbidities is essential, and the development of high-quality methods for collecting such data is critical. While self-reported data are adequate for assessing the presence of any CVD condition, medical record review will yield higher quality data on specific CVD conditions. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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