Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention.

Caregivers of children with autism spectrum disorder (ASD) may find it difficult to feel a sense of control and to cope with the overall physical and emotional demands of caring for their child. While caregivers are able to successfully cope with a high level of stress, there are limits to their res...

Descripción completa

Detalles Bibliográficos
Publicado en:Journal of Genetic Counseling Vol. 27; no. 1; pp. 252 - 263
Autores principales: Haakonsen Smith, Christy, Turbitt, Erin, Muschelli, John, Leonard, Lori, Lewis, Katie L., Freedman, Brian, Muratori, Michelle, Biesecker, Barbara B.
Formato: research tables/charts randomized controlled trial Journal Article
Publicado: Wiley-Blackwell Feb2018
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=127734284&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 127734284
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        10597700
        41A
      jtl: Journal of Genetic Counseling
      issn: 10597700
      maglogo: N
    pubinfo:
      dt: Feb2018
      vid: 27
      iid: 1
      pid: 480
      pub: Wiley-Blackwell
      place: Malden, Massachusetts
    artinfo:
      ui:
        127734284
        127734284
        127734284
        10.1007/s10897-017-0144-1
        127734284
      ppf: 252
      ppct: 11
      formats:
        fmt:
          – @attributes:
              type: T
          – @attributes:
              type: P
      tig:
        atl: Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention.
      aug:
        au:
          Haakonsen Smith, Christy
          Turbitt, Erin
          Muschelli, John
          Leonard, Lori
          Lewis, Katie L.
          Freedman, Brian
          Muratori, Michelle
          Biesecker, Barbara B.
        affil: Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes Health, 31 Center Dr, MSC 2073, Building 31, Room B1B36, 20892-2073, Bethesda, MD, USA
      sug:
        subj:
          Coping
          Child Care Providers Education
          Autism Spectrum Disorder In Infancy and Childhood
          Genetic Counseling
          Human
          Child
          Self-Efficacy
          Outcomes of Education
          Control Group
          Pilot Studies
          Randomized Controlled Trials
          Child: 6-12 years
      ab: Caregivers of children with autism spectrum disorder (ASD) may find it difficult to feel a sense of control and to cope with the overall physical and emotional demands of caring for their child. While caregivers are able to successfully cope with a high level of stress, there are limits to their resources and abilities to cope over time. Genetic counselors working with affected families may be able to help parents more effectively manage stress related to the disorder. Few short-term interventions have been reported in genetic counseling yet implementation of evidence-based examples may be achievable. This study aimed to assess the feasibility of a coping effectiveness training (CET) intervention designed to enhance coping self-efficacy (CSE) among caregivers of children with ASD, with the eventual goal of translating this intervention into genetic counseling practice. A randomized treatment-control design was used to investigate the feasibility of an intervention using CET among caregivers of children with ASD. The primary outcome was the feasibility of the intervention; the secondary outcome was improvements in CSE in the intervention group as compared to the control group. Caregivers were recruited and randomized into the treatment (n=15) or control (n=13) groups. Of these, 22 completed the study (retention: 78.6%). The intervention was highly feasible; most caregivers found the CET helpful, practical, useful, and relatively easy to attend. The treatment group demonstrated significantly increased CSE from pre-intervention to post-intervention (p=0.02). Between group differences were not significant when comparing the pre-post changes. We provide preliminary evidence that CET may be beneficial to caregivers of children with ASD. The results of this feasibility study support development of a phase II study of this intervention in a larger cohort, aimed to be implemented into a genetic counseling setting.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        randomized controlled trial
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N