The internet as a source of support for youth with chronic conditions: A qualitative study.
Abstract: Background: Adolescents living with chronic conditions often portray themselves as “healthy” online, yet use the Internet as one of their top sources of health information and social communication. There is a need to develop online support programs specific to adolescents with chronic cond...
| Publicado en: | Child: Care, Health & Development Vol. 44; no. 2; pp. 212 - 221 |
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| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Mar2018
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=127846987&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 127846987 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03051862 6NX jtl: Child: Care, Health & Development issn: 03051862 maglogo: Y pubinfo: dt: Mar2018 vid: 44 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 127846987 127846987 127846987 10.1111/cch.12535 127846987 ppf: 212 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: The internet as a source of support for youth with chronic conditions: A qualitative study. aug: au: Ahola Kohut, S. LeBlanc, C. O'Leary, K. McPherson, A. C. McCarthy, E. Nguyen, C. Stinson, J. affil: Medical Psychiatry Alliance, Hospital for Sick Children, Toronto, ON, Canada sug: subj: Chronic Disease Diagnosis Internet Support, Psychosocial Human Qualitative Studies Semi-Structured Interview Child Adolescence Male Female Social Networking Health Information Patient Care Online Services Adult Child: 6-12 years Adolescent: 13-18 years Adult: 19-44 years Male Female ab: Abstract: Background: Adolescents living with chronic conditions often portray themselves as “healthy” online, yet use the Internet as one of their top sources of health information and social communication. There is a need to develop online support programs specific to adolescents with chronic conditions in order to provide a private space to discuss concerns. This paper endeavors to increase our understanding of the online support needs and wants of these adolescents and their interest in and preferences for an online support program. Methods: A qualitative descriptive study using semistructured interviews was completed. Stratified purposive sampling was utilized to ensure a representative sample based on age and diagnosis. English speaking adolescents (aged 12–18 years) diagnosed with a chronic condition were recruited from clinic and inpatient areas across 3 paediatric hospitals in Canada. Results: Thirty‐three participants aged 15.3 ± 1.8 years (64% female) completed the study. The main topics identified were (a) the purpose of current online activity, (b) the benefits and challenges of existing online supports, and (c) a description of ideal online resources. The purpose of online activity was social networking, information, online gaming, and social support. When accessing health information online, participants prioritized websites that were easy to access and understand despite the trustworthiness of the site. The reported benefits and challenges varied across participants with many areas perceived as both a benefit and a challenge. The majority of participants were interested in participating in an online support program that included both accurate disease‐related information and a community of other adolescents to provide social support. Conclusions: Adolescents with chronic conditions are interested in online support that encompasses health information and social support that is flexible and easy to navigate. Findings can be used to develop or adapt existing online support programs for adolescents with chronic conditions to help increase engagement and utilization. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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