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“I carry her in my heart”: An exploration of the experience of bereavement for people with learning disability.

Accessible summary: Four people with learning disability talked about what it was like when someone they cared about had died. They said that it was important they were included, but that it was hard. They said they carried on loving the person after they died and that they missed them. Abstract: Ba...

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Published in:British Journal of Learning Disabilities Vol. 46; no. 1; pp. 45 - 54
Main Authors: Thorp, Nicki, Stedmon, Jacqui, Lloyd, Helen
Format: research tables/charts Journal Article
Published: Wiley-Blackwell Mar2018
Online Access:View this record in EBSCOhost
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      jtl: British Journal of Learning Disabilities
      issn: 13544187
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    pubinfo:
      dt: Mar2018
      vid: 46
      iid: 1
      pid: 480
      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        10.1111/bld.12212
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        atl: “I carry her in my heart”: An exploration of the experience of bereavement for people with learning disability.
      aug:
        au:
          Thorp, Nicki
          Stedmon, Jacqui
          Lloyd, Helen
        affil: Plymouth University, Plymouth, UK
      sug:
        subj:
          Bereavement Evaluation
          Learning Disorders Psychosocial Factors
          Persons with Intellectual Disabilities Psychosocial Factors
          Interviews
          Phenomenological Research
          Thematic Analysis
          Emotions
          Love
          Human
          Male
          Female
          Adult
          Middle Age
          Family Relations
          United Kingdom
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Male
          Female
      ab: Accessible summary: Four people with learning disability talked about what it was like when someone they cared about had died. They said that it was important they were included, but that it was hard. They said they carried on loving the person after they died and that they missed them. Abstract: Background: Bereavement is a universal experience, yet little research has explored the lived experience of bereavement for people with learning disability (PWLD). Materials and methods: Four PWLD were interviewed about their experience of bereavement. Data were analysed using interpretative phenomenological analysis. Results: Four themes were identified: “Needing to know: Being included,” “Struggling to say: The emotional experience,” “Love after death: A continuing relationship” and “Missing their presence: The wider impact of death.” Conclusions: PWLD should have the opportunity to make informed choices about their level of involvement and to develop their emotional experience. PWLD should be supported to develop a continued bond with the deceased and the wider impact of their loss recognised.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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