Quality of life among parents of preterm infants: a scoping review.

Purpose: To synthesize the body of knowledge on the factors influencing the QoL of mothers and fathers of preterm infants.Methods: A scoping review was performed. Publications indexed in PubMed®, Web of Science™, CINAHL® and PsycINFO® were searched, targeting studies presenting original empirical da...

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Published in:Quality of Life Research Vol. 27; no. 5; pp. 1119 - 1132
Main Authors: Amorim, Mariana, Silva, Susana, Kelly-Irving, Michelle, Alves, Elisabete
Format: research systematic review tables/charts Journal Article
Published: Springer Nature May2018
Online Access:View this record in EBSCOhost
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      dt: May2018
      vid: 27
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      pub: Springer Nature
      place: New York, New York
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        atl: Quality of life among parents of preterm infants: a scoping review.
      aug:
        au:
          Amorim, Mariana
          Silva, Susana
          Kelly-Irving, Michelle
          Alves, Elisabete
        affil: EPIUnit - Instituto de Saúde Pública, Universidade do Porto, Rua das Taipas nº135, 4050-600, Porto, Portugal
      sug:
        subj:
          Quality of Life
          Infant, Premature
          Parents Psychosocial Factors
          Funding Source
          Human
          Systematic Review
          Parents
          Content Analysis
          PubMed
          CINAHL Database
          Psycinfo
          Family Centered Care
      ab: Purpose: To synthesize the body of knowledge on the factors influencing the QoL of mothers and fathers of preterm infants.Methods: A scoping review was performed. Publications indexed in PubMed®, Web of Science™, CINAHL® and PsycINFO® were searched, targeting studies presenting original empirical data that examined parental perception on QoL after a preterm delivery. Eligibility and data extraction were conducted by two independent researchers. The main quantitative findings were synthesized and qualitative data were explored by content analysis.Results: The studies, 11 quantitative and 1 mixed methods, were derived mainly from the USA (n = 6). Heterogeneity across the studies was observed regarding the operationalization of QoL and the use of units of analysis (mothers, parents, families and caregivers). In a context where 40 out of 45 covariates were analysed by only one or two studies, results suggested that parental QoL after a preterm delivery is influenced by factors related with mother's characteristics, family issues and health care environment rather than infants' variables. Factors regarding fathers' characteristics and structural levels were not addressed.Conclusions: Standardizing the operationalization of the QoL when analysing mothers and fathers of preterm infants calls for a structured questionnaire adapted to their specific needs. Further research should include both mothers and fathers, invest in mixed methods approaches and be performed in different countries and settings for allowing integration and comparison of findings.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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