Living with lymphoedema-the perspective of cancer patients: a qualitative study.

Purpose: The aim of this study was to describe the lived experience of lymphoedema and the barriers faced by cancer sufferers receiving physiotherapy outpatient treatment.Methods: A qualitative, phenomenological study was performed. Purposeful sampling method was used. Data collection methods includ...

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Publicado en:Supportive Care in Cancer Vol. 26; no. 6; pp. 2005 - 2014
Autores principales: Río-González, Ángela, Molina-Rueda, Francisco, Palacios-Ceña, Domingo, Alguacil-Diego, Isabel M.
Formato: research tables/charts Journal Article
Publicado: Springer Nature Jun2018
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jun2018
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      pub: Springer Nature
      place: New York, New York
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        atl: Living with lymphoedema-the perspective of cancer patients: a qualitative study.
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          Río-González, Ángela
          Molina-Rueda, Francisco
          Palacios-Ceña, Domingo
          Alguacil-Diego, Isabel M.
        affil: School of Sport Science and Physical Therapy, Universidad Europea de Madrid, Madrid, Spain
      sug:
        subj:
          Lymphedema Psychosocial Factors
          Quality of Life Psychosocial Factors
          Middle Age
          Qualitative Studies
          Male
          Female
          Clinical Assessment Tools
          Ferrans and Powers Quality of Life Index
          Scales
          Middle Aged: 45-64 years
          Male
          Female
      ab: Purpose: The aim of this study was to describe the lived experience of lymphoedema and the barriers faced by cancer sufferers receiving physiotherapy outpatient treatment.Methods: A qualitative, phenomenological study was performed. Purposeful sampling method was used. Data collection methods included unstructured and semi-structured interviews and researcher field notes. A thematic analysis was used. The study was conducted following the Consolidated Criteria for Reporting Qualitative Research guidelines.Results: Eleven patients (62.18 ± 10.14 years) (90.91% women) participated. One theme was identified with different subgroups. The main theme 'Living a life with multiple barriers'-formed by the subthemes 'Discovering physical and psychological barriers', 'Searching information', 'Building relationships' and 'Controlling expenses'-displays the daily difficulties they must face in areas such as work. The patients reported that lymphoedema is a constant emotional and physical challenge. They need to adapt their lives to their new situation, learning how to manage the lymphoedema.Conclusions: Patients considered lymphoedema as a clinical situation with multiple barriers and they found that it does alter their quality of life. These results can be applied in onco-haematology units to develop specific protocols for customers.
      pubtype: Academic Journal
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        research
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    language: English
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