Retrieving the Vital Status of Patients with Cancer Using Online Obituaries...Building Continents of Knowledge in the Oceans of Data: The Future of Co-Created e Health EFMI. Medical Informatics Europe (MIE) April 24-26, 2018 Gothenburg, Sweden

The aim of this study was to develop a methodology to link mortality data from Internet sources with administrative data from electronic health records and to assess the performance of different record linkage methods. We extracted the electronic health records of all adult patients hospitalized at...

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Publicado en:Studies in Health Technology & Informatics Vol. 247; pp. 571 - 576
Autores principales: SYLVESTRE, Emmanuelle, BOUZILLE, Guillaume, BRETON, Mathias, CUGGIA, Marc, CAMPILLO-GIMENEZ, Boris
Formato: research tables/charts Journal Article
Publicado: Sage Publications Inc. 2018
Acceso en línea:Ver este registro en EBSCOhost
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      dt: 2018
      vid: 247
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      pub: Sage Publications Inc.
      place: Thousand Oaks, California
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        10.3233/978-1-61499-852-5-571
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        atl: Retrieving the Vital Status of Patients with Cancer Using Online Obituaries...Building Continents of Knowledge in the Oceans of Data: The Future of Co-Created e Health EFMI. Medical Informatics Europe (MIE) April 24-26, 2018 Gothenburg, Sweden
      aug:
        au:
          SYLVESTRE, Emmanuelle
          BOUZILLE, Guillaume
          BRETON, Mathias
          CUGGIA, Marc
          CAMPILLO-GIMENEZ, Boris
        affil: INSERM, U1099, Rennes, F-35000, France
      sug:
        subj:
          Health Information Systems
          Electronic Data Interchange
          Mortality
          Electronic Health Records
          Human
          Male
          Female
          Record Review
          Cancer Patients
          Databases, Health
          Data Analysis
          Sex Factors
          Male
          Female
      ab: The aim of this study was to develop a methodology to link mortality data from Internet sources with administrative data from electronic health records and to assess the performance of different record linkage methods. We extracted the electronic health records of all adult patients hospitalized at Rennes comprehensive cancer center between January 1, 2010 and December 31, 2015 and separated them in two groups (training and test set). We also extracted all available online obituaries from the most exhaustive French funeral home website using web scraping techniques. We used and evaluated three different algorithms (deterministic, approximate deterministic and probabilistic) to link the patients' records with online obituaries. We optimized the algorithms using the training set and then evaluated them in the test set. The overall precision was between 98 and 100%. The three classification algorithms performed better for men than women. The probabilistic classification decreased the number of manual reviews, but slightly increased the number of false negatives. To address the problem of long delays in the publication or sharing of mortality data, online obituary data could be considered for real-time surveillance of mortality in patients with cancer because they are easily available and time-efficient.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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