Person‐centred care in nurse‐led outpatient rheumatology clinics: Conceptualization and initial development of a measurement instrument.

Abstract: Background: Person‐centred care (PCC) is considered a key component of effective illness management and high‐quality care. However, the PCC concept is underdeveloped in outpatient care. In rheumatology, PCC is considered an unmet need and its further development and evaluation is of high p...

Descripción completa

Detalles Bibliográficos
Publicado en:Musculoskeletal Care Vol. 16; no. 2; pp. 287 - 296
Autores principales: Bala, Sidona‐Valentina, Forslind, Kristina, Fridlund, Bengt, Samuelson, Karin, Svensson, Björn, Hagell, Peter
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Jun2018
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=130268016&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 130268016
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        14782189
        VRY
      jtl: Musculoskeletal Care
      issn: 14782189
      maglogo: Y
    pubinfo:
      dt: Jun2018
      vid: 16
      iid: 2
      pid: 480
      pub: Wiley-Blackwell
      place: Malden, Massachusetts
    artinfo:
      ui:
        130268016
        130268016
        130268016
        10.1002/msc.1233
        130268016
      ppf: 287
      ppct: 9
      formats:
      tig:
        atl: Person‐centred care in nurse‐led outpatient rheumatology clinics: Conceptualization and initial development of a measurement instrument.
      aug:
        au:
          Bala, Sidona‐Valentina
          Forslind, Kristina
          Fridlund, Bengt
          Samuelson, Karin
          Svensson, Björn
          Hagell, Peter
        affil: Department of Health Sciences, Lund University, Lund, Sweden
      sug:
        subj:
          Patient Centered Care Evaluation
          Rheumatology
          Health Facilities
          Nurses Psychosocial Factors
          Instrument Construction
          Arthritis, Rheumatoid Nursing
          Nursing Care
          Outpatient Service
          Human
          Conceptual Framework
          Nurse-Patient Relations
          Patient Attitudes
          Content Validity
          Social Environment
          Empowerment
          Questionnaires
          Arthritis, Rheumatoid Psychosocial Factors
          Outpatients
          Decision Making, Shared
          Descriptive Statistics
      ab: Abstract: Background: Person‐centred care (PCC) is considered a key component of effective illness management and high‐quality care. However, the PCC concept is underdeveloped in outpatient care. In rheumatology, PCC is considered an unmet need and its further development and evaluation is of high priority. The aim of the present study was to conceptualize and operationalize PCC, in order to develop an instrument for measuring patient‐perceived PCC in nurse‐led outpatient rheumatology clinics. Methods: A conceptual outpatient PCC framework was developed, based on the experiences of people with rheumatoid arthritis (RA), person‐centredness principles and existing PCC frameworks. The resulting framework was operationalized into the PCC instrument for outpatient care in rheumatology (PCCoc/rheum), which was tested for acceptability and content validity among 50 individuals with RA attending a nurse‐led outpatient clinic. Results: The conceptual framework focuses on the meeting between the person with RA and the nurse, and comprises five interrelated domains: social environment, personalization, shared decision‐making, empowerment and communication. Operationalization of the domains into a pool of items generated a preliminary PCCoc/rheum version, which was completed in a mean (standard deviation) of 5.3 (2.5) min. Respondents found items easy to understand (77%) and relevant (93%). The Content Validity Index of the PCCoc/rheum was 0.94 (item level range, 0.87–1.0). About 80% of respondents considered some items redundant. Based on these results, the PCCoc/rheum was revised into a 24‐item questionnaire. Conclusions: A conceptual outpatient PCC framework and a 24‐item questionnaire intended to measure PCC in nurse‐led outpatient rheumatology clinics were developed. The extent to which the questionnaire represents a measurement instrument remains to be tested.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N