Parent Caring Response Scoring System: development and psychometric evaluation in the context of childhood cancer‐related port starts.

Rationale: Multiple observational coding systems have been developed and validated to assess parent–child interactions during painful procedures. Most of these coding systems are neither theory‐based nor do they well represent parent nonverbal behaviours. Aims: Develop the Parent Caring Response Sco...

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Publicado en:Scandinavian Journal of Caring Sciences Vol. 32; no. 2; pp. 734 - 746
Autores principales: Bai, Jinbing, Swanson, Kristen, Harper, Felicity W. K., Penner, Louis A., Santacroce, Sheila J.
Formato: equations & formulas research tables/charts Journal Article
Publicado: Wiley-Blackwell Jun2018
Acceso en línea:Ver este registro en EBSCOhost
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      jtl: Scandinavian Journal of Caring Sciences
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      dt: Jun2018
      vid: 32
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        130361886
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        10.1111/scs.12504
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        atl: Parent Caring Response Scoring System: development and psychometric evaluation in the context of childhood cancer‐related port starts.
      aug:
        au:
          Bai, Jinbing
          Swanson, Kristen
          Harper, Felicity W. K.
          Penner, Louis A.
          Santacroce, Sheila J.
        affil: Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA
      sug:
        subj:
          Parents
          Cancer Patients In Infancy and Childhood
          Parent-Child Relations Evaluation
          Parental Behavior Evaluation
          Catheterization, Peripheral Adverse Effects
          Treatment Related Pain In Infancy and Childhood
          Oncologic Care In Infancy and Childhood
          Instrument Construction
          Instrument Validation
          Human
          Funding Source
          Validation Studies
          Construct Validity
          kappa Statistic
          Interrater Reliability
          Spearman's Rank Correlation Coefficient
          Caring
          Wong-Baker FACES Pain Rating Scale
          Scales
          Prospective Studies
          Videorecording
          Hospitals, Pediatric
          Coding
          Child Behavior
          Pain Measurement
          Vignettes
          Communication
          Male
          Female
          Child, Preschool
          Child
          Adult
          Socioeconomic Factors
          Descriptive Statistics
          Child, Preschool: 2-5 years
          Child: 6-12 years
          Adult: 19-44 years
          Male
          Female
      ab: Rationale: Multiple observational coding systems have been developed and validated to assess parent–child interactions during painful procedures. Most of these coding systems are neither theory‐based nor do they well represent parent nonverbal behaviours. Aims: Develop the Parent Caring Response Scoring System (P‐CaReSS) based on Swanson's Theory of Caring and test its psychometric properties in children in cancer port starts. Methods: A hybrid approach of inductive and deductive coding was used to formulate the preliminary observational codes for the P‐CaReSS. Twenty‐nine children, each with one video‐recording of port start available, were selected from the parent study (R01CA138981) to refine the P‐CaReSS, train coders and test inter‐rater reliability. Videos of another 43 children were used to evaluate the construct validity of P‐CaReSS. Per cent agreement and Cohen's kappa were used to present the inter‐rater reliability. Spearman rank‐order correlations were used to report the construct validity. Results: The 18‐item P‐CaReSS includes three types of parent behaviours: verbal, nonverbal and emotional behaviours. These parent interaction behaviours comprise five caring domains – knowing, being with, doing for, enabling, and maintaining belief – and one noncaring domain. On average the per cent agreement was 0.82 for the P‐CaReSS overall, with average per cent agreements above 0.80 for both verbal and nonverbal behaviours. Kappa coefficient was 0.81 for the emotional behaviour. The behavioural codes in the P‐CaReSS showed significant correlations with independent ratings of parent distress, child distress and child cooperation. Conclusions: The P‐CaReSS is a promising tool that can be used to evaluate parent verbal, nonverbal and emotional behaviours during cancer‐related port starts. This observational tool can be used to guide the development of nursing interventions to help parents caring for their child during cancer procedures.
      pubtype: Academic Journal
      doctype:
        equations & formulas
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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