'Quality of Life' of Parents of Children Suffering from Pediatric Malignancies in a Low Income Setting.

Objectives: To evaluate the impact of pediatric malignancies on quality of life (QOL) and psychological status of parents and to correlate it with well-matched controls and socioeconomic status.Methods: A prospective comparative cross-sectional study was conducted. Seventy parents of children diagno...

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Publicado en:Indian Journal of Pediatrics Vol. 85; no. 9; pp. 718 - 723
Autores principales: Bafna, Vibha Sanjay, Bafna, Tanvi Ajay, Sampagar, Abhilasha, Rupavataram, Sunita Raman
Formato: Journal Article
Publicado: Springer Nature Sep2018
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Sep2018
      vid: 85
      iid: 9
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      pub: Springer Nature
      place: New York, New York
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        NLM29368109
        10.1007/s12098-018-2626-z
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        131394493
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        atl: 'Quality of Life' of Parents of Children Suffering from Pediatric Malignancies in a Low Income Setting.
      aug:
        au:
          Bafna, Vibha Sanjay
          Bafna, Tanvi Ajay
          Sampagar, Abhilasha
          Rupavataram, Sunita Raman
        affil: Department of Pediatrics, Bharati Vidyapeeth Deemed University Medical College, Pune, Maharashtra, India
      sug:
        subj:
          Neoplasms Complications
          Quality of Life
          Cross Sectional Studies
          Parents
          Prospective Studies
          Neoplasms Therapy
          Child
          Child: 6-12 years
      ab: Objectives: To evaluate the impact of pediatric malignancies on quality of life (QOL) and psychological status of parents and to correlate it with well-matched controls and socioeconomic status.Methods: A prospective comparative cross-sectional study was conducted. Seventy parents of children diagnosed with pediatric malignancies within the last three months were enrolled in the study group (SG) and 50 matched parents of healthy children as the control group (CG). Assessment was done by WHOQOL-BREF questionnaire, Depression Anxiety Stress Score (DASS) scale and Kuppuswamy scale. Data analysis was done by using Statistical Package for social sciences (SPSS) version 20.0. p value <0.05 considered as significant.Results: Mean score of QOL for SG in physical health domain (D1), psychological health (D2), social relationships (D3) and environment health (D4) was 48.64, 43.07, 47.36, and 40.58 respectively whereas that of CG was 79.38, 76.32, 80.58 and 72.86 respectively and the difference was statistically significant (p value <0.001). The environmental domain (D4) had the lowest mean score amongst all domains in the SG. QOL was maximally affected by the parameter sleep, depression, personal relationship and lack of information in the respective domains. Mean depression, anxiety and stress score of SG was 23.43, 20.33, 23.56 respectively whereas that of the CG was 7.1, 8.06 and 8.54 respectively and this was statistically significant (p value <0.001). The QOL of SG in D1 for the lower socioeconomic class was 48.86 and for the upper class was 63 and this difference was statistically significant (p value <0.015). Similarly in D2 and D4 the QOL scores went higher with the socioeconomic class and this was statistically significant (p value < 0.007 and p value <0.030 respectively).Conclusions: SG had poorer QOL and were significantly more depressed, anxious and stressed. It is concluded that effective interventions are needed to aid these families to improve outcomes by delivering the benefit of vastly improved therapeutic strategies in this field.
      pubtype: Academic Journal
      doctype: Journal Article
      ougenre: Article
    language: English
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