Combining online and in-person methods to evaluate the content validity of PROMIS fatigue short forms in rheumatoid arthritis.
Purpose: Fatigue is frequent and often severe and disabling in RA, and there is no consensus on how to measure it. We used online surveys and in-person interviews to evaluate PROMIS Fatigue 7a and 8a short forms (SFs) in people with RA.Methods: We recruited people with RA from an online patient comm...
| Publicado en: | Quality of Life Research Vol. 27; no. 9; pp. 2443 - 2452 |
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| Autores principales: | , , , , , , , , , , , , |
| Formato: | Journal Article |
| Publicado: |
Springer Nature
Sep2018
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=131455365&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 131455365 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Sep2018 vid: 27 iid: 9 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 131455365 131455365 NLM29797175 10.1007/s11136-018-1880-x NLM29797175 131455365 ppf: 2443 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Combining online and in-person methods to evaluate the content validity of PROMIS fatigue short forms in rheumatoid arthritis. aug: au: Bartlett, S. J. Gutierrez, A. K. Butanis, A. Bykerk, V. P. Curtis, J. R. Ginsberg, S. Leong, A. L. Lyddiatt, A. Nowell, W. B. Orbai, A. M. Smith, K. C. Bingham, C. O. Bingham, C O 3rd affil: Center for Health Outcomes Research, McGill University, 5252 de Maisonneuve West, #3D-57, H4A 3S5, Montreal, QC, Canada sug: subj: Diagnosis, Psychosocial Methods Arthritis, Rheumatoid Complications Fatigue Etiology Education, Non-Traditional Female Male Reproducibility of Results Arthritis, Rheumatoid Pathology Fatigue Pathology Middle Age Quality of Life Middle Aged: 45-64 years Female Male ab: Purpose: Fatigue is frequent and often severe and disabling in RA, and there is no consensus on how to measure it. We used online surveys and in-person interviews to evaluate PROMIS Fatigue 7a and 8a short forms (SFs) in people with RA.Methods: We recruited people with RA from an online patient community (n = 200) and three academic medical centers (n = 84) in the US. Participants completed both SFs then rated the comprehensiveness and comprehensibility of the items to their fatigue experience. Cognitive debriefing of items was conducted in a subset of 32 clinic patients. Descriptive statistics were calculated, and associations were evaluated using Pearson and Spearman correlation coefficients.Results: Mean SF scores were similar (p ≥ .61) among clinic patients reflecting mild fatigue (i.e., 54.5-55.9), but were significantly higher (p < .001) in online participants. SF Fatigue scores correlated highly (r ≥ 0.82; p < .000) and moderately with patient assessments of disease activity (r ≥ 0.62; p = .000). Most (70-92%) reported that the items "completely" or "mostly" reflected their experience. Almost all (≥ 94%) could distinguish general fatigue from RA fatigue. Most (≥ 85%) rated individual items questions as "somewhat" or "very relevant" to their fatigue experience, averaged their fatigue over the past 7 days (58%), and rated fatigue impact versus severity (72 vs. 19%). 99% rated fatigue as an important symptom they considered when deciding how well their current treatment was controlling their RA.Conclusions: Results suggest that items in the single-score PROMIS Fatigue SFs demonstrate content validity and can adequately capture the wide range of fatigue experiences of people with RA. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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