Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review.

Objective: We conducted a scoping review of the tools used to measure therapeutic relationship in patients with haemophilia. Background: Haemophilia is an inherited bleeding disorder caused by a deficiency of a clotting factor in the blood. Therapeutic relationship is foundational to the management...

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Publicado en:Health Expectations Vol. 21; no. 6; pp. 1208 - 1231
Autores principales: McCabe, Erin, Miciak, Maxi, Dennett, Liz, Manns, Patricia, Guptill, Christine, Hall, Jeremy, Gross, Douglas P.
Formato: research systematic review tables/charts Journal Article
Publicado: Wiley-Blackwell Dec2018
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review.
      aug:
        au:
          McCabe, Erin
          Miciak, Maxi
          Dennett, Liz
          Manns, Patricia
          Guptill, Christine
          Hall, Jeremy
          Gross, Douglas P.
        affil: Faculty of Rehabilitation Medicine, University of Alberta, Edmonton AB, Canada
      sug:
        subj:
          Hemophilia Therapy
          Professional-Patient Relations Evaluation
          Quality of Health Care Evaluation
          Human
          Systematic Review
          Scoping Review
          Treatment Outcomes
          Medline
          Embase
          CINAHL Database
          Psycinfo
          Consumer Participation
          Patient-Reported Outcomes
      ab: Objective: We conducted a scoping review of the tools used to measure therapeutic relationship in patients with haemophilia. Background: Haemophilia is an inherited bleeding disorder caused by a deficiency of a clotting factor in the blood. Therapeutic relationship is foundational to the management of patients with chronic diseases like haemophilia. A reliable and valid measurement tool for assessing therapeutic relationship is needed to evaluate the quality of care received by these patients, and to rigorously study the association between therapeutic relationship and the outcomes of treatment. Methods: We adopted the Arksey and O'Malley framework for scoping studies. The following electronic databases were searched for studies that measured a construct related to therapeutic relationships in haemophilia care: MEDLINE, EMBASE, CINAHL, PsycINFO and Scopus. We inventoried these studies, identified the measurement tools used, and described each tool by purpose, content, measurement properties and target population. We identified gaps in the current evidence and directions for future research. Results: There were 253 unique records retrieved in the search, and twenty studies were deemed relevant. Ten measurement tools were identified. None of the tools measured therapeutic relationship as a single entity; however, six tools measured constructs considered part of patient‐provider relationship (eg trust, communication, working alliance). There has been little validation testing of these tools in haemophilia patient populations. Conclusions: There is a need for a validated tool for measuring therapeutic relationship in the care of patients with haemophilia. This review provides a foundation for future research in this area.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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