Helping young people who have learning disabilities and their families to plan end of life care: the ADVANCE toolkit.
Young people who have learning disabilities commonly have many complex and severe life-limiting conditions that result in premature death. Too often neither they nor their family and friends are prepared for end of life situations. End of life care planning is helpful in eliciting and honouring the...
| Publicado en: | Learning Disability Practice Vol. 21; no. 6; pp. 33 - 42 |
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| Autores principales: | , , |
| Formato: | Journal Article |
| Publicado: |
Royal College of Nursing of the United Kingdom (The)
11/27/2018
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=133208017&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 133208017 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 14658712 FTU jtl: Learning Disability Practice issn: 14658712 maglogo: N pubinfo: dt: 11/27/2018 vid: 21 iid: 6 pid: 6040 pub: Royal College of Nursing of the United Kingdom (The) artinfo: ui: 133208017 10.7748/ldp.2018.e1914 133208017 ppf: 33 ppct: 9 formats: tig: atl: Helping young people who have learning disabilities and their families to plan end of life care: the ADVANCE toolkit. aug: au: Gallagher, Ann Peacock, Matthew Arber, Anne affil: Professor of ethics and care, International Care Ethics Observatory, School of Health Sciences, Faculty of Health and Medical Sciences, University of Surrey, Guildford, England sug: subj: Intellectual Disability Psychosocial Factors Terminal Care Decision Making, Ethical Education Family Death Advance Care Planning Caregivers Adolescence Confidence Adolescent: 13-18 years ab: Young people who have learning disabilities commonly have many complex and severe life-limiting conditions that result in premature death. Too often neither they nor their family and friends are prepared for end of life situations. End of life care planning is helpful in eliciting and honouring the young person's wishes, as far as possible. However, it can be challenging due to communication difficulties and limited understanding of the meaning of death and dying. This article introduces the ADVANCE toolkit featuring a values-based framework that aims to help caregivers who work with young people who have learning disabilities, including nurses, social workers and care assistants, develop their confidence and skills in end of life care planning. The ADVANCE toolkit enables insight in knowing how, when and with whom to discuss the sensitive topic of planning for end of life care. In this article, six activities are included for readers to complete with a view to enabling engagement with the material presented. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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