Pursuing Normality: Reflections on Cancer Survivorship Care of Lymphoma Survivors.

Background: The present study explored the reflections on cancer survivorship care of lymphoma survivors in active treatment. Lymphoma survivors have survivorship care needs, yet their participation in cancer survivorship care programs is still reported as low. Objective: The aim of this study was t...

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Publicado en:Cancer Nursing Vol. 42; no. 1; pp. 42 - 50
Autores principales: Madsen, Louise S., Handberg, Charlotte
Formato: research tables/charts Journal Article
Publicado: Lippincott Williams & Wilkins Jan/Feb2019
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jan/Feb2019
      vid: 42
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      pid: 433
      pub: Lippincott Williams & Wilkins
      place: Baltimore, Maryland
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        10.1097/NCC.0000000000000565
        133625523
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        atl: Pursuing Normality: Reflections on Cancer Survivorship Care of Lymphoma Survivors.
      aug:
        au:
          Madsen, Louise S.
          Handberg, Charlotte
        affil: Author Affiliations: Department of Public Health, Section for Clinical Social Medicine and Rehabilitation, Faculty of Health, Aarhus University
      sug:
        subj:
          Lymphoma
          Cancer Survivors Psychosocial Factors
          Survivorship
          Oncologic Care
          Consumer Participation Psychosocial Factors
          Human
          Ethnographic Research
          Semi-Structured Interview
          Conceptual Framework
          Patient Care Plans
          Convenience Sample
          Male
          Female
          Adult
          Middle Age
          Aged
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Male
          Female
      ab: Background: The present study explored the reflections on cancer survivorship care of lymphoma survivors in active treatment. Lymphoma survivors have survivorship care needs, yet their participation in cancer survivorship care programs is still reported as low. Objective: The aim of this study was to understand the reflections on cancer survivorship care of lymphoma survivors to aid the future planning of cancer survivorship care and overcome barriers to participation. Methods: Data were generated in a hematological ward during 4 months of ethnographic fieldwork, including participant observation and 46 semistructured interviews with 9 lymphoma survivors. Interpretive description methodology and social practice theory guided the analytical framework. Results: "Pursuing normality" was an overall finding and was comprised of 2 overarching patterns, "future prospects" and "survivorship care perceptions," both implying an influence on whether to participate in cancer survivorship care programs. Because of "pursuing normality," 8 of 9 participants opted out of cancer survivorship care programming due to prospects of "being cured" and perceptions of cancer survivorship care as "a continuation of the disease." Conclusion: The findings add to our understanding of possible barriers for participation in cancer survivorship care and outline important aspects to account for in the practice of health professionals. Implications for Practice: The study findings may guide practice to establish a systematic approach for providing information to cancer survivors regarding the possible management of their symptoms and of the content and purpose of cancer survivorship care.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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