Initial development of Supportive care Assessment, Prioritization and Recommendations for Kids (SPARK), a symptom screening and management application.

Background: We developed Supportive care Prioritization, Assessment and Recommendations for Kids (SPARK), a web-based application designed to facilitate symptom screening by children receiving cancer treatments and access to supportive care clinical practice guidelines primarily by healthcare provid...

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Publicado en:BMC Medical Informatics & Decision Making Vol. 19; no. 1
Autores principales: Cook, Sadie, Vettese, Emily, Soman, Dilip, Hyslop, Shannon, Kuczynski, Susan, Spiegler, Brenda, Davis, Hailey, Duong, Nathan, Ou Wai, Stacee, Golabek, Robert, Golabek, Patryk, Antoszek-Rallo, Adam, Schechter, Tal, Lee Dupuis, L., Sung, Lillian
Formato: research Journal Article
Publicado: BioMed Central 1/10/2019
Acceso en línea:Ver este registro en EBSCOhost
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      dt: 1/10/2019
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      pub: BioMed Central
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        atl: Initial development of Supportive care Assessment, Prioritization and Recommendations for Kids (SPARK), a symptom screening and management application.
      aug:
        au:
          Cook, Sadie
          Vettese, Emily
          Soman, Dilip
          Hyslop, Shannon
          Kuczynski, Susan
          Spiegler, Brenda
          Davis, Hailey
          Duong, Nathan
          Ou Wai, Stacee
          Golabek, Robert
          Golabek, Patryk
          Antoszek-Rallo, Adam
          Schechter, Tal
          Lee Dupuis, L.
          Sung, Lillian
        affil: Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, 686 Bay Street, M5G 0A4, Toronto, Ontario, Canada
      sug:
        subj:
          Consumer Participation
          Software Design
          Neoplasms Diagnosis
          Neoplasms Therapy
          Medical Informatics
          Adolescence
          Female
          Human
          Male
          Internet
          Qualitative Studies
          Child
          Validation Studies
          Comparative Studies
          Evaluation Research
          Multicenter Studies
          Scales
          Adolescent: 13-18 years
          Child: 6-12 years
          Female
          Male
      ab: Background: We developed Supportive care Prioritization, Assessment and Recommendations for Kids (SPARK), a web-based application designed to facilitate symptom screening by children receiving cancer treatments and access to supportive care clinical practice guidelines primarily by healthcare providers. The objective was to describe the initial development and evaluation of SPARK from the perspective of children.Implementation: Development and evaluation occurred in three phases: (1) low fidelity focused on functionality, (2) design focused on "look and feel" and (3) high fidelity confirmed functionality and design. Cognitive interviews were conducted with children receiving cancer treatments 8-18 years of age. Evaluation occurred after every five interviews and changes were guided by a Review Panel. Quantitative evaluation included SPARK ease of use and understandability of SPARK reports.Results: The number of children included by phase were: low fidelity (n = 30), design (n = 30) and high fidelity (n = 30). Across phases, the median age was 13.2 (range 8.5 to 18.4) years. During low-fidelity and design phases, iterative refinements to SPARK improved website navigation, usability and likability from the perspective of children and established symptom report design. Among the last 10 children enrolled to high-fidelity testing, all (100%) understood how to complete symptom screening, access reports and interpret reports. Among these 10 respondents, all (100%) found SPARK easy to use and 9 (90%) found SPARK reports were easy to understand.Conclusions: SPARK is a web-based application which is usable and understandable, and it is now appropriate to use for research. Future efforts will focus on clinical implementation of SPARK.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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