Measures for social support in raising a child with a disability: A scoping review.

Background: The benefits of social support for caregivers raising a child with a disability have been identified in the literature. These benefits include the improvement of the mental and physical well‐being of the caregivers, improvement in caregiving styles, and overall improvement of family qual...

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Publicado en:Child: Care, Health & Development Vol. 45; no. 2; pp. 159 - 175
Autores principales: Mantri‐Langeveldt, Anushka, Dada, Shakila, Boshoff, Kobie
Formato: research systematic review tables/charts Journal Article
Publicado: Wiley-Blackwell Mar2019
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Mar2019
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        atl: Measures for social support in raising a child with a disability: A scoping review.
      aug:
        au:
          Mantri‐Langeveldt, Anushka
          Dada, Shakila
          Boshoff, Kobie
        affil: Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria South Africa
      sug:
        subj:
          Support, Psychosocial Evaluation
          Children with Disabilities Psychosocial Factors
          Human
          Systematic Review
          Scoping Review
          Caregiver Attitudes
          Parental Attitudes
          Grandparents Psychosocial Factors
          Infant, Newborn
          Infant
          Child, Preschool
          Child
          Adolescence
          Disease Attributes
          Psychometrics
          Infant, Newborn: birth-1 month
          Infant: 1-23 months
          Child, Preschool: 2-5 years
          Child: 6-12 years
          Adolescent: 13-18 years
      ab: Background: The benefits of social support for caregivers raising a child with a disability have been identified in the literature. These benefits include the improvement of the mental and physical well‐being of the caregivers, improvement in caregiving styles, and overall improvement of family quality of life. Whilst the benefits of social support are widely reported, the definitions and measures of social support in the literature are varied. Method: A scoping review was therefore undertaken to identify and describe the tools used to measure social support of primary caregivers (i.e., parents or grandparents) raising a child (0–18 years) with a congenital disability in international studies. Ten databases were systematically searched. Results: Sixteen studies were included in the review, from which nine social support measures were identified. Attributes of the measures were searched from their referenced papers and described in terms of their reported psychometric properties. Conclusions: Through the identification of the measures of social support and ensuring its accurate measurement, direction can be provided for intervention by allowing professionals to detect and address social support available. Future recommendations for research are made.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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