Narrative Navigation: HIV and (Good) Care in Aceh, Indonesia.

In this article, I elaborate the concept of narrative navigation to analyze the subjective and intersubjective ways in which people struggle through experiences of illness by constructing multiple, ambiguous and non-linear narratives that may continuously change, as they reposition themselves within...

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Publicado en:Culture, Medicine & Psychiatry Vol. 43; no. 1; pp. 116 - 134
Autor principal: Samuels, Annemarie
Formato: Journal Article
Publicado: Springer Nature Mar2019
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Narrative Navigation: HIV and (Good) Care in Aceh, Indonesia.
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        au: Samuels, Annemarie
        affil: Institute of Cultural Anthropology and Development Sociology, Leiden University, Wassenaarseweg 52, 2333 AK, Leiden, The Netherlands
      sug:
        subj:
          HIV Infections Therapy
          HIV Infections Psychosocial Factors
          Primary Health Care
          Patient Navigation Methods
          Caregivers
          Indonesia
          Support, Psychosocial
          Social Work
          Ways of Coping Questionnaire
      ab: In this article, I elaborate the concept of narrative navigation to analyze the subjective and intersubjective ways in which people struggle through experiences of illness by constructing multiple, ambiguous and non-linear narratives that may continuously change, as they reposition themselves within changing circumstances. Drawing on ethnographic material on HIV care in Aceh, Indonesia, I show how subjunctivity and open-endedness are crucial narrative ways in which people living with HIV, their relatives, medical doctors and support group workers adjust to possibilities and limitations of care over time, thereby continuously negotiating what good care may be. Unfolding within a changing Indonesian healthcare system, their narrative navigations reveal caregiving to be a complex and contradictory process, thereby problematizing boundaries between good care and neglect.
      pubtype: Academic Journal
      doctype: Journal Article
      ougenre: Article
    language: English
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