The legal framework for European cervical cancer screening programmes.
Background A comprehensive legal framework needs to be developed to run the health services and to regulate the information systems required to manage and to ensure the quality of cancer screening programmes. The aim of our study was to document and to compare the status of legal basis for cervical...
| Publicado en: | European Journal of Public Health Vol. 29; no. 2; pp. 345 - 351 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Oxford University Press / USA
Apr2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=135444472&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 135444472 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 11011262 BHW jtl: European Journal of Public Health issn: 11011262 maglogo: N pubinfo: dt: Apr2019 vid: 29 iid: 2 pid: 622 pub: Oxford University Press / USA artinfo: ui: 135444472 135444472 135444472 10.1093/eurpub/cky200 135444472 ppf: 345 ppct: 6 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: The legal framework for European cervical cancer screening programmes. aug: au: Májek, Ondřej Anttila, Ahti Arbyn, Marc Veen, Evert-Ben van Engesæter, Birgit Lönnberg, Stefan affil: Institute of Biostatistics and Analyses, Faculty of Medicine, Masaryk University, Brno, Czech RepublicInstitute of Health Information and Statistics, Praha 2, Czech Republic sug: subj: Cervix Neoplasms Diagnosis Cancer Screening Legislation and Jurisprudence Conceptual Framework Human Europe Questionnaires Decision Making, Clinical Medical Record Linkage Registries, Disease Quality Assurance ab: Background A comprehensive legal framework needs to be developed to run the health services and to regulate the information systems required to manage and to ensure the quality of cancer screening programmes. The aim of our study was to document and to compare the status of legal basis for cervical screening registration in European countries. Methods An electronic questionnaire including questions on governance, decision-making structures and legal framework was developed. The primary responses were collected by September 2016. Results We sent the questionnaire to representatives of 35 European countries (28 countries of the EU, with the United Kingdom included as 4 countries; 4 EFTA member countries: Iceland, Liechtenstein, Norway, and Switzerland); responses were collected from 33 countries. The legal framework makes it possible to personally invite individuals in 29 countries (88%). Systematic screening registration in an electronic registry is legally enshrined in 23 countries (70%). Individual linkage of records between screening and cancer registries is allowed in 19 of those countries. Linkage studies involving cancer and screening registries have been conducted in 15 countries. Conclusion Although the majority of EU/EFTA countries have implemented population-based screening, only half of them have successfully performed record linkage studies, which are nevertheless a key recommendation for quality assurance of the entire screening process. The European legislation is open to the possibility of using health data for these purposes; however, member states themselves must recognize the public interest to create a legal basis, which would enable all the necessary functions for high-quality cancer screening programmes. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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