Development of Measure Yourself Concerns and Wellbeing for informal caregivers of people with cancer-a multicentred study.
Purpose: Measure Yourself Concerns and Wellbeing (MYCaW) is a validated person-centred measure of the concerns and wellbeing of people affected by cancer. Research suggests that the concerns of informal caregivers (ICs) are as complex and severely rated as people with cancer, yet MYCaW has only been...
| Publicado en: | Supportive Care in Cancer Vol. 27; no. 5; pp. 1901 - 1910 |
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| Autores principales: | , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Springer Nature
May2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=135752899&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 135752899 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09414355 O1J jtl: Supportive Care in Cancer issn: 09414355 maglogo: N pubinfo: dt: May2019 vid: 27 iid: 5 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 135752899 135752899 NLM30206726 135752899 10.1007/s00520-018-4422-8 NLM30206726 135752899 ppf: 1901 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Development of Measure Yourself Concerns and Wellbeing for informal caregivers of people with cancer-a multicentred study. aug: au: Jolliffe, Rachel Collaco, Nicole Seers, Helen Farrell, Chris Sawkins, Michael J. Polley, Marie J. affil: Penny Brohn UK, Pill, BS20 OHH, Bristol, England sug: subj: Neoplasms Psychosocial Factors Caregivers Psychosocial Factors Human Sickness Impact Profile Attitude to Health Male Middle Age Female Validation Studies Comparative Studies Evaluation Research Multicenter Studies Middle Aged: 45-64 years Male Female ab: Purpose: Measure Yourself Concerns and Wellbeing (MYCaW) is a validated person-centred measure of the concerns and wellbeing of people affected by cancer. Research suggests that the concerns of informal caregivers (ICs) are as complex and severely rated as people with cancer, yet MYCaW has only been used to represent cancer patients' concerns and wellbeing. This paper reports on the development of a new qualitative coding framework for MYCaW to capture the concerns of ICs, to better understand the needs of this group.Methods: This multicentred study involved collection of data from ICs receiving support from two UK cancer support charities (Penny Brohn UK and Cavendish Cancer Care). Qualitative codes were developed through a detailed thematic analysis of ICs' stated concerns.Results: Thematic analysis of IC questionnaire data identified key themes which were translated into a coding framework with two overarching sections; (1) 'informal caregiver concerns for self' and (2) 'informal caregiver concerns for the person with cancer'. Supercategories with specific accompanying codes were developed for each section. Two further rounds of framework testing across different cohorts allowed for iterative development and refinement of the framework content.Conclusions: This is the first person-centred tool specifically designed for capturing IC's concerns through their own words. This coding framework will allow for IC data to be analysed using a rigorous and reproducible method, and therefore reported in a standardised way. This may also be of interest to those exploring the needs of ICs of people in other situations. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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