Ethical and Regulatory Considerations for Using Social Media Platforms to Locate and Track Research Participants.
As social media becomes increasingly popular, human subjects researchers are able to use these platforms to locate, track, and communicate with study participants, thereby increasing participant retention and the generalizability and validity of research. The use of social media; however, raises nov...
| Publicado en: | American Journal of Bioethics Vol. 19; no. 6; pp. 47 - 62 |
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| Autores principales: | , , , , , , , , |
| Formato: | tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Jun2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=136689837&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 136689837 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15265161 FKZ jtl: American Journal of Bioethics issn: 15265161 maglogo: N pubinfo: dt: Jun2019 vid: 19 iid: 6 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 136689837 136689837 136689837 10.1080/15265161.2019.1602176 136689837 ppf: 47 ppct: 15 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Ethical and Regulatory Considerations for Using Social Media Platforms to Locate and Track Research Participants. aug: au: Bhatia-Lin, Ananya Boon-Dooley, Alexandra Roberts, Michelle K. Pronai, Caroline Fisher, Dylan Parker, Lea Engstrom, Allison Ingraham, Leah Darnell, Doyanne affil: University of Washington School of Medicine sug: subj: Research Subjects Social Media Ethical Issues Geographic Information Systems Research Ethics Privacy and Confidentiality Validity Autonomy Consent (Research) ab: As social media becomes increasingly popular, human subjects researchers are able to use these platforms to locate, track, and communicate with study participants, thereby increasing participant retention and the generalizability and validity of research. The use of social media; however, raises novel ethical and regulatory issues that have received limited attention in the literature and federal regulations. We review research ethics and regulations and outline the implications for maintaining participant privacy, respecting participant autonomy, and promoting researcher transparency when using social media to locate and track participants. We offer a rubric that can be used in future studies to determine ethical and regulation-consistent use of social media platforms and illustrate the rubric using our study team's experience with Facebook. We also offer recommendations for both researchers and institutional review boards that emphasize the importance of well-described procedures for social media use as part of informed consent. pubtype: Academic Journal doctype: tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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