Care Values in Dementia: Patterns of Perception and Incongruence Among Family Care Dyads.
Background and Objectives Persons with dementia (PWDs) often place greater importance on their care values (i.e. maintaining autonomy and social relations, choosing caregivers, avoiding being a burden) than family caregivers (CGs) perceive, which can detract from dementia care planning (e.g. care ar...
| Publicado en: | Gerontologist Vol. 59; no. 3; pp. 509 - 519 |
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| Autores principales: | , , , |
| Formato: | Artículo |
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Oxford University Press / USA
Jun2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=136733285&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 136733285 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00169013 GET jtl: Gerontologist issn: 00169013 maglogo: N pubinfo: dt: Jun2019 vid: 59 iid: 3 pid: 622 pub: Oxford University Press / USA artinfo: ui: 136733285 10.1093/geront/gny008 ppf: 509 ppct: 10 formats: tig: atl: Care Values in Dementia: Patterns of Perception and Incongruence Among Family Care Dyads. aug: au: Miller, Lyndsey M Whitlatch, Carol J Lee, Christopher S Caserta, Michael S affil: College of Nursing, The University of Utah, Salt Lake City Center for Research and Education, Benjamin Rose Institute on Aging, Cleveland, Ohio William F. Connell School of Nursing, Boston College, Chestnut Hill, Massachusetts College of Nursing and Center on Aging, The University of Utah, Salt Lake City su: Age distribution Cognition Interpersonal relations Sensory perception Advance directives (Medical care) Cross-sectional method Diagnosis of dementia Dementia risk factors Latent structure analysis Caregiver attitudes Independent living sug: subj: Age distribution Cognition Interpersonal relations Sensory perception Advance directives (Medical care) Cross-sectional method Diagnosis of dementia Dementia risk factors Latent structure analysis Caregiver attitudes Independent living keyword: Care Values Caregiving – Informal Dementia dyadic analysis Family issues Care Values Caregiving – Informal Dementia dyadic analysis Family issues ab: Background and Objectives Persons with dementia (PWDs) often place greater importance on their care values (i.e. maintaining autonomy and social relations, choosing caregivers, avoiding being a burden) than family caregivers (CGs) perceive, which can detract from dementia care planning (e.g. care arrangements or surrogate decisions). Notable variability has been found across family care dyads (PWD and CG) in their perceptions of care values, suggesting that there may be multiple patterns of perception. The purpose of this study was to characterize distinct patterns of perception of care values in family care dyads. Design and Methods Using cross-sectional data from 228 community-dwelling family care dyads, we quantified dyads' average perceptions and incongruence in perceptions of the importance of everyday care values using multilevel modeling. These scores were then used in a latent class analysis to identify distinct patterns of perception, with the dyad as the unit of analysis. Results Two distinct patterns of care value perception were identified. 25% of dyads were labeled as "CG underestimating" due to lower average estimations of the importance of PWDs' care values, and a significant amount of dyadic incongruence. Underestimating dyads were characterized by a confirmed diagnosis of dementia, lower cognitive function, and younger age in PWDs, and higher relationship strain in the dyad. Implications Care dyads that fall into an underestimating pattern may be at greater risk for inadequate dementia care planning. Interventions to improve care planning in this higher-risk group may include care values identification with the PWD, strategies for alleviating relationship strain, early-stage planning, and disease education. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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