End‐of‐life priorities of older adults with terminal illness and caregivers: A qualitative consultation.
Background: As older adults approach the end‐of‐life (EOL), many are faced with complex decisions including whether to use medical advances to prolong life. Limited information exists on the priorities of older adults at the EOL. Objective: This study aimed to explore patient and family experiences...
| Publicado en: | Health Expectations Vol. 22; no. 3; pp. 405 - 415 |
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| Autores principales: | , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=136749617&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 136749617 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Jun2019 vid: 22 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 136749617 136749617 136749617 10.1111/hex.12860 136749617 ppf: 405 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: End‐of‐life priorities of older adults with terminal illness and caregivers: A qualitative consultation. aug: au: Lewis, Ebony T. Harrison, Reema Cardona, Magnolia Hanly, Laura Hillman, Ken Psirides, Alex Zammit, Alexandra McFarland, Kathryn Dawson, Angela Barr, Margo affil: Faculty of Medicine, School of Public Health and Community Medicine, University of New South Wales, Sydney New South Wales, Australia sug: subj: Terminally Ill Patients Psychosocial Factors Caregivers Psychosocial Factors Patient Preference Terminal Care Human Funding Source New South Wales Male Female Adult Middle Age Aged Aged, 80 and Over Descriptive Research Qualitative Studies Focus Groups Interviews Thematic Analysis Support, Psychosocial Clinical Competence Professional-Patient Relations Professional-Family Relations Patient Attitudes Caregiver Attitudes Quality of Life Audiorecording Data Analysis Software Content Analysis Compassion Advance Care Planning Quality of Health Care Communication Personal Values Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Male Female ab: Background: As older adults approach the end‐of‐life (EOL), many are faced with complex decisions including whether to use medical advances to prolong life. Limited information exists on the priorities of older adults at the EOL. Objective: This study aimed to explore patient and family experiences and identify factors deemed important to quality EOL care. Method: A descriptive qualitative study involving three focus group discussions (n = 18) and six in‐depth interviews with older adults suffering from either a terminal condition and/or caregivers were conducted in NSW, Australia. Data were analysed thematically. Results: Seven major themes were identified as follows: quality as a priority, sense of control, life on hold, need for health system support, being at home, talking about death and competent and caring health professionals. An underpinning priority throughout the seven themes was knowing and adhering to patient's wishes. Conclusion: Our study highlights that to better adhere to EOL patient's wishes a reorganization of care needs is required. The readiness of the health system to cater for this expectation is questionable as real choices may not be available in acute hospital settings. With an ageing population, a reorganization of care which influences the way we manage terminal patients is required. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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