Improving patient‐centred care for persons with Parkinson's: Qualitative interviews with care partners about their engagement in discussions of "off" periods.
Objective: This study explored how care partners (CPs) of persons with Parkinson's (PwP) are engaged in discussions of "off" symptoms. Methods: During qualitative interviews, CPs of PwP sampled by convenience through the Michael J Fox Foundation online clinical trial matching service were asked to d...
| Publicado en: | Health Expectations Vol. 22; no. 3; pp. 555 - 565 |
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| Autores principales: | , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=136749636&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 136749636 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Jun2019 vid: 22 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 136749636 136749636 136749636 10.1111/hex.12884 136749636 ppf: 555 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Improving patient‐centred care for persons with Parkinson's: Qualitative interviews with care partners about their engagement in discussions of "off" periods. aug: au: Rastgardani, Tara Marras, Connie Gagliardi, Anna R. Armstrong, Melissa J. affil: University Health Network, Toronto Ontario, Canada sug: subj: Quality Improvement Patient Centered Care Parkinson Disease Psychosocial Factors Caregiver Attitudes Communication Human Secondary Analysis Exploratory Research Qualitative Studies Telephone Interviews Convenience Sample Comparative Studies Audiorecording Thematic Analysis Female Male Middle Age Aged Funding Source Middle Aged: 45-64 years Aged: 65+ years Female Male ab: Objective: This study explored how care partners (CPs) of persons with Parkinson's (PwP) are engaged in discussions of "off" symptoms. Methods: During qualitative interviews, CPs of PwP sampled by convenience through the Michael J Fox Foundation online clinical trial matching service were asked to describe their familiarity with "off" symptoms, how "off" symptoms were discussed with clinicians, and the impact of "off" symptoms on them. Data were analysed using constant comparative technique by all members of the research team. Results: A total of 20 CPs were interviewed. Compared with PwP, they were more likely to describe "off" symptoms to clinicians. CPs identified important aspects of patient‐centred care for PD: establishing a therapeutic relationship, soliciting and actively listening to information about symptoms, and providing self‐management support to both PwP and CPs. CPs said that clinicians did not always engage CPs, ask about "off" symptoms or provide self‐management guidance, limiting their ability to function as caregivers. Conclusion: By not engaging and educating CPs, "off" symptoms may not be identified or addressed, leading to suboptimal medical management and quality of life for PwP. These findings must be confirmed on a broader scale through ongoing research but suggest the potential need for interventions targeted at clinicians and at CPs to promote patient‐centred care for PwP. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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