A qualitative study investigating the meaning of participation to improve the measurement of this construct.
Purpose: The purpose of this study was to improve the measurement of participation. Research questions were as follows: (1) What constitutes participation according to adults? (2) Do they mention participation subdomains that are not covered in the Patient-Reported Outcomes Measurement Information S...
| Published in: | Quality of Life Research Vol. 28; no. 8; pp. 2233 - 2247 |
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| Main Authors: | , , , , , , , , , , , , , |
| Format: | Journal Article |
| Published: |
Springer Nature
Aug2019
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=137419491&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 137419491 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Aug2019 vid: 28 iid: 8 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 137419491 137419491 NLM30993605 10.1007/s11136-019-02179-9 NLM30993605 137419491 ppf: 2233 ppct: 14 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: A qualitative study investigating the meaning of participation to improve the measurement of this construct. aug: au: de Wind, Astrid van der Beek, Allard J. Boezeman, Edwin J. Swenneker, Rosalie Anema, Johannes R. de Boer, Angela G. E. M. Beckerman, Heleen Hoving, Jan L. Nieuwenhuijsen, Karen Scharn, Micky Stam, Mariska Terwee, Caroline B. Frings-Dresen, Monique H. W. Tamminga, Sietske J. affil: Department of Public and Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC, VU University, Van der Boechorststraat 7, 1081 BT, Amsterdam, The Netherlands sug: subj: Social Participation Psychosocial Factors Social Behavior Quality of Life Psychosocial Factors Middle Age Health Status Qualitative Studies Employment Adult Persons with Disabilities Male Female Persons with Disabilities Psychosocial Factors Questionnaires Scales Social Readjustment Rating Scale Middle Aged: 45-64 years Adult: 19-44 years Male Female ab: Purpose: The purpose of this study was to improve the measurement of participation. Research questions were as follows: (1) What constitutes participation according to adults? (2) Do they mention participation subdomains that are not covered in the Patient-Reported Outcomes Measurement Information System (PROMIS) item bank "Ability to Participate in Social Roles and Activities"?Methods: Semi-structured interviews were conducted with 46 adults from the general population. Interviews were thematically analysed using the International Classification of Functioning, Disability and Health (ICF) as conceptual framework. Thereafter, assigned codes were compared to PROMIS item bank.Results: Participants mentioned a variety of participation subdomains that were meaningful to them, such as socializing and employment. All subdomains could be classified into the ICF. The following subdomains were not covered by the PROMIS item bank: acquisition of necessities, education life, economic life, community life, and religion and spirituality. Also a distinction between remunerative (i.e. paid) and non-remunerative (i.e. unpaid) employment, and domestic life was missing. Several ICF sub-codes were not mentioned, such as ceremonies.Conclusions: Many participation subdomains were mentioned to be meaningful. As several of these subdomains are not covered in the PROMIS item bank, it may benefit from extension with new (patient-)reported subdomains of participation. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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